I would also like information on this. I am a first time mom and my son has a hemangioma on his left cheek that extends into the orbit of his eye. We started him on steroids, but are hoping to do the propranolol very soon as well, to try and stay away from the steroid side effects. He just turned 6 weeks, so it is good to see others starting it around his age frame. Thank you in advance!
My 8 month old daughter is on Propranolol for the past 8 weeks.
She has a left cheek hemangioma which started to ulcerate. She was started on 1 mg/kg twice a day and within 24 hrs the color changed. It is about 50 % smaller and thankfully not growing anymore. She was also started on Regranex gel - help with the healing of the ulcer - after 6 weeks the ulcer was completely healed and no more daily dressings.
We decided against prednisone - too many side-effects and in ulcerated hemangioma it can make the ulceration worse.
My daughter started propranolol at 6 weeks, she is now 5 1/2 months the propranolol stopped the growth, and almost immediately began shrinking the H. It was 5 inches by 4 inches by 2 inches at start, now it is 1 inch by 1 inch and FLAT.
Where is your daughter's hemangioma located? I would also like to see before and after pics. Was she also on steroid treatment? Thanks!
An international charitable
organization that networks families affected by a vascular birthmark, tumor, or syndrome to the appropriate medical professionals for evaluation and/or treatment,
provides informational resources as well as sponsors physician education, mobilizes medical missions trips, and supports research and programs that promote acceptance
for individuals with birthmarks.
Here you will find information and resources for patients and families affected by hemangioma, port wine stain,
arteriovenous malformation, capillary malformation, lymphatic malformation, Sturge Weber syndrome, Klippel-Trenaunay syndrome, and any other type of vascular birthmark
Information accessed through the VBF is presented in summary form
in order to impart general information relating to the diagnosis
and treatment of vascular birthmarks. Such information is not complete
and should not be used as a substitute for a consultation or visit
with your physician or other health care provider. Information accessed
through VBF website is not exhaustive and does not cover every aspect
of vascular birthmarks. VBF makes no warranty as to the information's
completeness, reliability or accuracy. Should you have any health
care related questions regarding this matter, please see your physician
or other health care provider promptly.
Information accessed through the VBF website is provided "AS
IS" and without warranty, express or implied. All implied warranties
of merchantability and fitness for a particular use or purpose are
hereby excluded. VBF shall not be liable under any theory or indemnity.
In no event shall VBF be liable for any damages, direct or indirect,
and all other damages, direct or indirect, special, incidental,
consequential or punitive, are hereby excluded even if VBF has been
advised of the possibility of such damages.