My story..kind of. - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment.
Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Individuals Living with Birthmarks > Living with a birthmark - my story

Reply
 
Thread Tools Display Modes
  #1  
Old 04-15-2009, 03:30 PM
Vildedyret Vildedyret is offline
Junior Member
 
Join Date: Apr 2009
Posts: 2
Talking My story..kind of.

Hi! I'm a sixteen year old girl from Norway with a facial PWS birthmark. It covers my left cheek, my chin and the left half of my lower lip.It's never really been much of a problem for me, even though it's been hard at times.
I've had treatments regularly since I was a baby, however it's probably been a year or so since last time now.

When I was a young girl I was never bothered with it, probably because I mostly was with guys and they never said anything about it. The only thing that mattered to them was that I was good at soccer, hehe. If anyone asked about it I only said that it was just a birthmark.
It wasn't until I was about eleven that I ever really thought about it. But I still didn't mind it all that much - I was thankful that I didn't have any diseases and such. After all, I'd much rather have my birthmark than for example not being able to walk.

I've never had any problems with bullying - as long as you don't care about it, no one else will either. And if someone does, then that's their problem. I've always been confident in myself and never hesitate to voice my opinion, so if someone sent a nasty remark my way, well then I'd send one right back at them.

It wasn't until I began in the 11th grade (this year) that I began wearing make-up to cover it up. I finally found something that I thought was comfortable (mineral powder make-up). And here's just a piece of advice for parents with children who have birthmarks. NEVER suggest that they should start to wear make-up. It's probably the worst thing you can do, and you'll just make them feel like they have something that they should cover up and that they're different from everybody else. Just let them decide when they want to/if they want to. Another thing I'd like to say is that if you cover up your birthmark, then you should take days where you don't wear make-up. Simply so you won't be like one of those who just can't walk out of the door without make-up on, because that's truly just sad.

I've had many laughs due to people not knowing what my birthmark is. A little girl once asked if I had taped a salami to my face. And once I tricked someone into believing I was attacked by piranhas.


I honestly have no idea what more to write, so bye! Remember that you're all beautiful, no matter what you might think about yourself! Your life is a miracle, don't waste it just because you're insecure about yourself!
Reply With Quote
  #2  
Old 04-15-2009, 09:19 PM
missy missy is online now
Administrator
 
Join Date: Apr 2006
Posts: 1,724
Default

That was a really nice post. You sound like a well-rounded confident young lady. Good on you!!

LOL @ taped a salami to your face. That's a good one!!

Thanks for coming and posting! Come by often and chat it up with the others.

Missy
Reply With Quote
  #3  
Old 05-09-2009, 10:34 PM
muco_87 muco_87 is offline
Junior Member
 
Join Date: May 2009
Posts: 3
Default

how can you be optimist like this ? i want to be optimist like you but unfortunately i couldn't succeed to be optimist for years :S

''A little girl once asked if I had taped a salami to my face'' =) it was very comic i meet questions like this too.
Reply With Quote
  #4  
Old 11-03-2009, 05:13 PM
RowdyBliss RowdyBliss is offline
Junior Member
 
Join Date: Jun 2009
Location: Delaware
Posts: 29
Default

I'm bringing this back up to the top because this is a GREAT post...

...but also because it is important for parents to see, especially the bit about not encouraging makeup or encouraging covering it up, like it's ugly or something to feel ashamed about.

I think that a lot of the confident attitude I have regarding my own rather large PWS (much of my right leg) has a lot to do with how my parents regarded it - which was... not at all. Seriously, nobody ever brought up my birthmark, I never had it treated, never saw a doctor for it - it was just there, a curiosity. People said all kinds of stupid things to me over the years, but most of it was just because they were curious about it. Mostly, I'd just shrug it off and say, "It's a birthmark. It's not a rash, it's not contagious, and it doesn't bother me." Once people knew what it was, it wasn't so scary or weird, and (Your piranha story made me laugh - I once convinced a particularly ignorant person I'd been trapped in a burning building!)
__________________
*~*~*~*~*
With all thy getting, get knowledge.

Come visit my blog:
http://shakingthetree.tumblr.com
Reply With Quote
  #5  
Old 11-17-2009, 09:19 PM
r2242 r2242 is offline
Junior Member
 
Join Date: Nov 2009
Posts: 12
Default

I agree that parents shouldn't suggest to their kids to cover up their in any ways. When I was little(6-12 yrs. old) my mom would advice me to cover up my birthmark, and not only with makeup but with my hair, or when taking photo's she would tell me to turn my face to the left a little to make my birthmark less visible. She also applied makeup over my birthmark (that didn't even cover up my birthmark and I still remember how nasty it smelled), but after a year or two I was sick of wearing makeup so then she stopped applying. I didn't see anything wrong with me then, I thought I was "normal." When I turned 14 I got very self conscious of the birthmark and start wearing makeup, but it was a choice that I made myself. Ever since, I have been wearing makeup. But now, my mom doesn't want me wearing makeup. She says that I'm beautiful the way I am. Really?!? Why did you try to cover up my birthmark when I was little? Was I not beautiful enough with the birthmark?
Parents please don't try to cover up your child's birthmark, let them make this decision themselves.
Reply With Quote
Reply


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
My story... sweet pea Living with a birthmark - my story 5 01-04-2010 06:28 AM
Jacqui's Story - Life With a Lymphatic Malformation jacquismom Living with a birthmark - my story 4 06-19-2008 08:03 PM
My Story Artemis Living with a birthmark - my story 1 03-11-2008 07:18 PM
My Story -Paul- Living with a birthmark - my story 2 10-28-2007 03:26 PM
My Story -Paul- Adults Living with Birthmarks 0 09-13-2006 11:30 PM