hemangiomas & Phaces syndrome - Vascular Birthmarks Foundation Forum
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View Poll Results: Has anyone had any experiences with Phaces Syndrome?
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Old 12-31-2003, 12:33 AM
roccosma
 
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Default hemangiomas & Phaces syndrome

I am looking for anyone with similar experiences with hemangiomas and Phaces syndrome. In october/03 my son, who was 4 months old, had a small (pea sized) hemangioma on his right side of his face. He had two strokes, on the right side of his brain, that they are attributing to his hemangioma. In addition he did have a PFO in his heart, which was surgically closed via heart surgery. The Doc's are all attributing this to a mild form of Phaces syndrome..Anyone out there with any similar experience?
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