Any Advice Welcome - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment.
Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > CMTC

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
  #1  
Old 12-18-2009, 11:34 PM
abatie abatie is offline
Senior Member
 
Join Date: Oct 2009
Posts: 235
Default Any Advice Welcome

Today we went to the dermatologist that diagnosed my daughter's CMTC. He wants her to be seen by a pediatric vascular specialist, pediatric dermatologist, pediatric orthopedic specialist,and radiology. We are not sure what to do now because the only pediatric dermatologist isn't located near the clinic that he thinks we should go to for everything.

He is recommending Vascular Anomalies Center at Children's Hospital at the University of Minnesota. Does anyone know anything about this place? He didn't know anything about it and hadn't sent any patients there. He just thought that their services were probably the best fit for our needs as a family in relationship to living in South Dakota.

He said we could also go to Rochester but from what he knew they didn't have a pediatric vascular specialist. Does anyone know anything about services available in Rochester.

He also told us to get ready for a fight with insurance. He said they aren't going to want to pay for any of this. I have already fought with them for just about every test she has had run.

HELP!!!
Reply With Quote
 


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump