Daughter just been dignosed with Lymphangioma - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  

1994 - 2014 Celebrating 20 years with 75,000 networked into treatment, over 3,000,000 views monthly on our world wide websites, virtual chapters on 6 of the 7 continents in the world, 500 families provided free lodging while seeking a medical opinion or treatment,over 400 conference scholarships awarded, 200 Day of Awareness events, 15 conferences, 12 programs (including our Ask/Accept Anti Bullying Program),10 walk/runs, 6 research projects funded, 4 physician education grants awarded, 4 college scholarships awarded, 3 Galas, and 2 International Missions Trips with over 300 treated by our international team.
Donate to VBF

Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Lymphatic Malformations (also known as cystic hygroma and lymphangioma)

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
  #1  
Old 12-23-2009, 03:04 PM
ksturrill ksturrill is offline
Junior Member
 
Join Date: Dec 2009
Posts: 3
Default Daughter just been dignosed with Lymphangioma

My six year old daughter has just been diagnosed with Lymphangioma in her neck, it has taken 4 months to get this far and we've just been told they cannot operate to remove it as the risk of some facial paralysis is too high. We live in the UK and am really glad I've found this site as I'm struggling to get information. We've been told the best to do is leave her until puberty and see how much it's changed and as she will have grown in maybe easier to operate on then. Has anyone had a similiar situation or is this the standard route taken. She has been tired with it and not her general happy self, we were told this was because they think she had a bleed within the lump and this will happen sometimes. She also suffers with circumscriptum on her tongue, which makes her tongue bleed. She's had that for about 4 years but doctors never diagnosed it and we've now been told it's connected.
Reply With Quote
 


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump