2 month old with scalp hemangioma - Vascular Birthmarks Foundation Forum
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  #1  
Old 02-22-2010, 07:53 PM
angkuzma angkuzma is offline
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Default 2 month old with scalp hemangioma

My daughter developed a strawberry hemangioma just after birth right next to the soft spot on her scalp. The day after her birth, we noticed a flat red mark on her scalp. The pediatrician assured us it was a birthmark and it would fade. Over the course of a few weeks, it began to raise and develop into a strawberry hemangioma. The pediatrician says it will get worse before it gets better and says most of them involute on their own. She is now almost 8 weeks old and it has grown to the size of a peanut mnm. We are concerned because it is growing up and has become very raised. It looks like a min-volcano on her scalp. I e-mailed Dr. Waner and he wanted to see her asap. He said he recommended treatment. Does anyone know what type of treatment a 2 month old can have? We would like to have it removed and not take the wait and see approach, since family members and friends of ours did that and the hemangiomas grew quite large and needed surgery at a later date. Is it safe to put a 2 month old under anesthesia to remove it? Any advice or knowledge is greatly appreciated.

Angela
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Old 02-23-2010, 12:01 AM
missy missy is offline
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Do you have an appointment with Dr. Waner already? If so, when is it? If not, where are you?

Hi and welcome!!

Missy
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  #3  
Old 02-23-2010, 12:57 AM
juliemeshanko juliemeshanko is offline
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Welcome Angela! I totally know what you are going through!! My daughter has a h on her scalp that grew very rapidly. She is now 4 months old and it is the size of a tangerine!! She was put under at 3 months for steroid injection and pulse dye laser--this just slowed the growth. The doctor did not want to do anything else so, we contacted Dr Levitin. We just had a phone consult and he is recommending surgical removal at 8-9 months. My advice to you is to get it treated asap whether it be steroid injections or surgical removal-hemangiomas are soo unpredictable and can grow sooo rapidly, you just never know!!
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Old 02-23-2010, 04:33 AM
nickbar nickbar is offline
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It really is a case by case situation and once Dr. Waner sees her in person he can determine the optimal time for treatment. He may be able to knock it off course early enough to avoid further distruction???

Corinne
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  #5  
Old 02-23-2010, 03:08 PM
angkuzma angkuzma is offline
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Thanks, everyone. I will see what Dr. Waner says. I don't think I could watch her hemangioma grow any bigger than it already is. It is the size of a peanut m n m now and it looks very painful for her, although I know they say they aren't painful. I'm hoping to get it removed early to avoid more surgeries in the future.

Angela
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  #6  
Old 02-23-2010, 03:09 PM
angkuzma angkuzma is offline
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Missy,
I am in NJ. I have an appt. with Dr. Waner on March 2.

Angela
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  #7  
Old 02-25-2010, 03:43 PM
Riley's Mom Riley's Mom is offline
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Hi Angela,
My daughter's scalp hemangioma began the same way. My 5 months old, it was the size of a baseball. She began treatment at six months. Her first of seven surgeries was at one year old. Her last being at 4 1/2 yrs. old. Dr. Waner and Dr. Levitin were her surgeons, they are an incredible pair of Doctors. (Dr. Levitin is now on the west coast). Dr. Waner is the best of the best, I took Riley to many surgeons all over the east coast. He took one look at her hemangioma, reassured us, and formulated a plan. I can send you before/after pictures if you like. We live in NJ as well!
Good Luck!
Kelli B. (Mom to Riley Jane, age 5, former scalp hemangioma)
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  #8  
Old 02-25-2010, 11:12 PM
juliemeshanko juliemeshanko is offline
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Kelli--my daughter has a tangerine size hemangioma on her scalp (she is just turning 4 months old) I would love to hear what treatments you have done and would recommend. She has had one laser and one steroid injection (I was the one that asked about Dr L) Dr L has recommended surgery for my daughter. Also, can I see the before and after pictures since we will most likely be going through something similar?? You can email me at ooneda1@yahoo.com Thanks!!
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  #9  
Old 03-06-2010, 01:47 PM
jlg2000 jlg2000 is offline
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I myself have a daughter who also has a hemangioma on her scalp right next to her soft spot, came on about 2 weeks after she was born was flat red dot I actually thought it was a mosquito bit, then grew larger and turned really red. She is now 20 months old I never got any treatment, I did see a specialist but they told me to wait and see approach. I do see her once a year for a visit she remeasures it and takes pictures. Now it is very soft and almost like a grayish white in color and is starting to go down.
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  #10  
Old 03-06-2010, 03:54 PM
missy missy is offline
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Hi and welcome!

That grayish white color is how everyone describes involution, so you are well on your way!! YAY!!

Missy
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