New to Lymphagioma-9month old baby girl-advice please? - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  

1994 - 2014 Celebrating 20 years with 75,000 networked into treatment, over 3,000,000 views monthly on our world wide websites, virtual chapters on 6 of the 7 continents in the world, 500 families provided free lodging while seeking a medical opinion or treatment,over 400 conference scholarships awarded, 200 Day of Awareness events, 15 conferences, 12 programs (including our Ask/Accept Anti Bullying Program),10 walk/runs, 6 research projects funded, 4 physician education grants awarded, 4 college scholarships awarded, 3 Galas, and 2 International Missions Trips with over 300 treated by our international team.
Donate to VBF

Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Lymphatic Malformations (also known as cystic hygroma and lymphangioma)

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
  #11  
Old 04-05-2010, 04:24 AM
Aolmstead Aolmstead is offline
Member
 
Join Date: Mar 2010
Posts: 31
Default Follow up on Miley

Good news with Dr. Levitin's support and evaluation on Miley's LM condition, he was able to convince our HMO plan that her condition was serious and that it needed urgent medical attention. It has been approved and we finally got authorization to go to UCLA Ronald Reagan medical hospital. Dr. Levitin recommended an interventional radiologist at UCLA and we will proceed with that....We are just waiting to get a consultation date...I am anxious to get Miley (10months old baby girl) in ASAP...she is coughing alot and is uncomfortable....her mass (according to Dr. Levitin's assessment on her MRI) is internal and covers within her chest, left lung and it's extensive ....possibly spreading agressively...Her throat/neck area inflates each time she cries or coughs alot....(looks like a bullfrog)...I noticed the back of her head/underneath her hair line a little pellet like growth is emerging...not sure if it's related to her current LM of her left neck...Please pray...I am soo scared and do not know the outcome but hopeful she will be in good hands with the right specialist.......
California here we come!!!
Reply With Quote
 


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump