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Go Back   Vascular Birthmarks Foundation Forum > Individuals Living with Birthmarks > Youth and Teen Support

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  #11  
Old 06-20-2006, 08:03 PM
Jose32
 
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Hank,


i am new to this site. I would like to know if the removing of birthmark will cause any scars or bruises.

I seen the news on Michael Steffano getting his birthmark removed without leaving any scars and bruises.

Is this true?

Also, Does the mark come back when it is removed? And do you know the estimated cost?

Please Help will appreciate it.
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  #12  
Old 06-21-2006, 01:03 AM
Jose32
 
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Hank or anyone?
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  #13  
Old 06-22-2006, 12:05 AM
hankbartenbach hankbartenbach is offline
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Join Date: Oct 2002
Location: Nebraska
Posts: 538
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Hi,

Yes, from what I know Michaels birthmark has been removed for the most part. I think he still gets maintance treatments though to keep it from coming back. I he is one of the luckyer ones. I have a very thick and dark PWS so it is a lot harder to remove.

Laser treatment diffently does not scar. But every once and a while you will find a doctor that is not train correctly for this condition that does not set up the machine right. But that is highly not going to happen. The V-Beam Pulse Dye Laser is the most common one used and is safe on infants.

If you have not found a doctor yet or might be interested in another opinion check the physican list under the resource section at the top of this page. Also, you can ask one of the experts on the home page of this website. Dr. Nelson is the PWS expert and he is very good with laser info and getting back to people quickly that have questions.

Hope this helps.

Hank
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  #14  
Old 09-08-2006, 01:57 AM
blondefairyinphx
 
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Default hi hank

my son is 13 yrs. old he has a hemangoma on his lower lip. and he did laser surgery 3 yrs. ago which has not helped him out actually its back and getting bigger, he has another problem which right now im tring to find a doctor, that specilizes in this and having a hard time doing so, if you know any thing about this could you please help me and my son.

lisa
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  #15  
Old 09-08-2006, 05:12 PM
hankbartenbach hankbartenbach is offline
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Join Date: Oct 2002
Location: Nebraska
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Hi Lisa,

First place I would look is in the resource section above to see if there is a doctor in your area. This doctors are who others have recommended and have used in the past.

Being that your son is 13 the condition is probably not a hemangioma being that most hemangiomas go away while a person is a child. Most doctors call them hamangiomas because they are not educated enough in this field. It could be several things but I am not a doctor and could not diagnoise him with something.

If you can not find a doctor in your area. You can go to the front page and send a message to the Ask the surgeon Dr. Levinten works with Dr. Waner who is my plastic surgeon. If you sent him a picture and discribe what it looks like, feels, and size he might be able to give you his opinion on how to treat it. Dr. Levinten has a daughter who had a hemangioma removed from Dr. Waner before they became partners so at a personal level he does understand what you are going thru. They are located in NY and are in the section I mentioned if you would like contact info for an appointment.
Or if you live on the West coast there is a specialist in Southern CA who is also in that section I mentioned.

If you are unable to find a place near you and are unable to make it to either of this other places let us know what state you live in and someone might know of a doctor in your area they can recommend that is not on the list of doctors.

I hope this helps and if you have any other questions please ask everybody on this group is here for you.

Hank
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  #16  
Old 09-08-2006, 05:13 PM
hankbartenbach hankbartenbach is offline
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Join Date: Oct 2002
Location: Nebraska
Posts: 538
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Hi Lisa,

First place I would look is in the resource section above to see if there is a doctor in your area. This doctors are who others have recommended and have used in the past.

Being that your son is 13 the condition is probably not a hemangioma being that most hemangiomas go away while a person is a child. Most doctors call them hamangiomas because they are not educated enough in this field. It could be several things but I am not a doctor and could not diagnoise him with something.

If you can not find a doctor in your area. You can go to the front page and send a message to the Ask the surgeon Dr. Levinten works with Dr. Waner who is my plastic surgeon. If you sent him a picture and discribe what it looks like, feels, and size he might be able to give you his opinion on how to treat it. Dr. Levinten has a daughter who had a hemangioma removed from Dr. Waner before they became partners so at a personal level he does understand what you are going thru. They are located in NY and are in the section I mentioned if you would like contact info for an appointment.
Or if you live on the West coast there is a specialist in Southern CA who is also in that section I mentioned.

If you are unable to find a place near you and are unable to make it to either of this other places let us know what state you live in and someone might know of a doctor in your area they can recommend that is not on the list of doctors.

I hope this helps and if you have any other questions please ask everybody on this group is here for you.

Hank
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  #17  
Old 03-12-2007, 08:02 PM
Island Island is offline
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Join Date: Feb 2007
Posts: 15
Default Hello Hank!

I think this thread is just great. You are a wonderful person!

I am a 20/f and for the past 20 years I have been told that I have a hemangioma on my right thigh. I've been communicating with some doctors via e-mail and I have been told that I more than likely have Klippel-Trenaunay Syndrome. Are you familiar with this at all? Some of the symptoms I have do not match up with the common KTS symptoms, and I have only been able to find information about what it is and not how it is treated. I was wondering, if you do in fact know about it, is laser surgery possible? The doctor I am emailing has told me I should go to New York to see him but I cant right now because im right in the middle of a semester at college. Any info you have would be appreciated!

Thanks!!!
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  #18  
Old 03-15-2007, 04:55 PM
hankbartenbach hankbartenbach is offline
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Join Date: Oct 2002
Location: Nebraska
Posts: 538
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Hi Island,

You are very welcome. This thread is to help people and with what time I have I help when I can.

First of all yes I know of KT and I do know several people with it. When you are doing your research also look up Sturge Weber Syndrome. The reason is because KT is a condition that a lot of people have with SWS. I have SWS but do not have PWS (port wine stain birthmark) on any of my arms or legs. It is only on my head. I can almost guarantee you that the birthmark you have is not a hemagioma but PWS. Most H's go away when a person is a child but not all of them. If the doctors think you have KT you would have to have PWS last I knew.

I would recommend talking to a KT expert. Others on the group have talked to Dr. Delfanian. He is VBF's ask the KT expert. You can email him if you would like. VBF has a like to him on the front of this website.

I hope this helps and I will talk to you soon.

Hank
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  #19  
Old 05-04-2010, 11:29 AM
Elisabethlenes Elisabethlenes is offline
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Join Date: May 2010
Posts: 1
Thumbs down Hemangioma

I'm a 16 year old girl from Norway, and i have a hemangioma on my breast. Its not bad in the winter, and i dont think about it that much. But when it's summer and the sun comes back and i start going to the beach, it grows bigger and gets red because of the sun, and it gives me really bad self-esteem because its just over the bikini so everyone can see it, and the doctors wont remove it because they think the scar will look so bad, but id rather have a scar that doesnt grow big and red in the summer

-Elisabeth
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  #20  
Old 08-26-2013, 11:30 PM
ALN ALN is offline
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Join Date: Aug 2013
Posts: 1
Default Congenital Hairy Nevi

I am almost 18 now and I was born with Congenital Hairy Nevi.
The condition covers a lot of my body. It starts in the middle of my back and then goes all the way down over my bottom and is also on my stomach and half way down my right leg and a bit down my left.
Growing up with this has been hard for me as I was bullied a lot in school and a lot of my relationships have ended once the person saw my body. I am really embarrassed and I hate going through life with this condition. I hate not being able to wear belly tops, shorts, skirts and dresses because I don't have the confidence to show off the birthmark.
It's getting me down a lot and its getting to a stage where I don't even want to leave the house or get close to someone because I'm scared they wont want a relationship with me when they see my birthmark like the others in the past have.
i'd do anything to have them removed so I can lead a normal teenage life but nobody seems to understand how much it is actually effecting me.
I was wondering if anyone has any advice or anything that they could give me? I would really appreciate the help
thankyou
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