newborn baby boy with PWS on almost half face
hello to all who we suffer together, each in his own way, the heavy load of birthmarks....
4 days ago, i gave birth to our second son, baby boy...we were so happy cause nothing seemed wrong...he seemed all healthy and normally looking boy...we did noticed red cheek, but we thought it is the cause of birth delivery....the nurse said everything was o.k. after sleeping and resting for some hours, i have seen our little baby again, and immediatelly i noticed the port wine stain. ofcourse i didnt know that that's it....i realised this after searching myself a lot on the internet during last days since i came from birth center. the pediatric doctor sent us to further researches, in order to hopefully deny Sturge-Webers syndrome.... so everything is still possible for us....one minute i cry and next minute i search all the possible sources to find help. but i have very low hope, cause if i understood right the PWS, it lasts all life..... i dont know about laser treatments, do they really help or it is only a slight change, but the stain remains....i wonder also when it is possible to start this laser treatments with such a little child...i come from Slovenia,Europe. Does anyone know which is for me the best place for laser treatments.... i wonder also, are PWS not removable with plastic kirurgy....? please share your information and experience with me, if they are similar....thank you so much!!!