Recommendation for check list-when finding THE right doctor for LM (macro) - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  

1994 - 2014 Celebrating 20 years with 75,000 networked into treatment, over 3,000,000 views monthly on our world wide websites, virtual chapters on 6 of the 7 continents in the world, 500 families provided free lodging while seeking a medical opinion or treatment,over 400 conference scholarships awarded, 200 Day of Awareness events, 15 conferences, 12 programs (including our Ask/Accept Anti Bullying Program),10 walk/runs, 6 research projects funded, 4 physician education grants awarded, 4 college scholarships awarded, 3 Galas, and 2 International Missions Trips with over 300 treated by our international team.
Donate to VBF

Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Lymphatic Malformations (also known as cystic hygroma and lymphangioma)

Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 11-01-2010, 03:16 AM
Aolmstead Aolmstead is offline
Join Date: Mar 2010
Posts: 31
Default Recommendation for check list-when finding THE right doctor for LM (macro)

Is there a checklist we can refer to when finding a specialist to treat lyphantic malformations? What are the 'must have' experiences when finding one?

Through research, it looks like Dr. Levitin or Dr. Shiels would be my choice for my daughters (16 mth) LM macro on left neck, but our HMO does NOT allow 'out of network' and wants us to seek local medical resources FIRST.

We do have an interventional radiologist in Las Vegas (highly recommended by our ENT dr. who did the sclerotherapy on her neck) but needed to ask him 'specific' key questions with his approach on LM.

Can anyone tell me what I should be asking.....(other than the obvious ie. doctors experience, how many LM cases they've treated etc..)

Any advice?
Reply With Quote

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump