My daughter who is 2 1/2 has a PWS on both sides of her face. We live in Tasmania and have to go to Melbourne for treatments as there are no laser services offered here either. She has had 4 treatments so far.
What I have found most surprising is the long waiting lists. The Drs. say that treatments must be done every 3 months, but our appointments have had to be 4 or 5 months apart and we had to wait 9 months before our first treatment. Is that the case in Sydney too? I know that there is no chance that the procedures will ever be peformed in Tasmania given the small population but I didn't realise that they were not done in Queensland. Let me know if I can do anything to help as I understand the difficulties involved in travelling between states for treatments.