little help.... - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary Gala Friday, October 10, 2014 in New York City

VBF 2014 Annual Conference Saturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Port Wine Stain Help > Port Wine Stain Help and Resources

Reply
 
Thread Tools Display Modes
  #1  
Old 11-06-2003, 07:07 AM
Puffy
 
Posts: n/a
Default little help....

My 21 month old son has a PWS on his body, it is mainly covered by clothing, but a section on his neck and arm are exposed to the world, so to speak.

So far we have only had one comment from a 4 year old about it, he said 'that little boy has a big bruise' but I know that when he goes to school (my son) he will get a lot more comments, good, bad or indifferent.

I would like to hear from ANYONE who suffered in school, society and in everyday life with their PWS and the comments that you got and how you coped with them.
Reply With Quote
  #2  
Old 01-11-2004, 11:51 PM
karenrose
 
Posts: n/a
Default Re:little help....

Hi--my daughter wasn't too bothered when she was with kids she'd known forever...it got bad when we moved and new kids had questions. adolescence has been TOUGH. hers is a mild case, but to her it's awful. she has pws on her torso, so it's usually hidden, but two-peice suits are out--midriff baring tops, etc. she would do anything to get rid of this.
Reply With Quote
  #3  
Old 02-25-2004, 07:24 AM
1941stain
 
Posts: n/a
Default Re:little help....

Hello. I've probably had more experience than anyone on this board since I'm almost 63 years old. My PWS is on my left thumb and the top of my hand and travels up my left arm, skipping a few places here and there. I have always hated having these marks, but I went ahead and lived as normally as possible, even wearing strapless evening gowns and swimsuits. People have always been kind to me. I have had comments but when I explained that the marks were birthmarks, no one said anything more about it. I was constantly the new girl in school since we moved often, but I was always accepted with no problems, even being selected to be in beauty contests. It didn't keep me from having boyfriends or husbands either! I have been truly blessed. I do prefer to hide the marks, but I don't think it's something anyone should feel they have to do.
Reply With Quote
  #4  
Old 02-25-2004, 01:24 PM
Mindy
 
Posts: n/a
Default Re:little help....

Hello ,

If possible try to get treatment for child. I am 42 with a Port Wine stain on the right side of my face and still live with being teased and called strwberry face in second grade. My mom also tried makeup at a youg age and what a mess that was. I am still embarrased of my face and it is hard to go swimming in the summer.

So please for your child do something and save them from the heartache it causes.
Reply With Quote
Reply


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump