7 yr. old daughter with AVM in foot - Vascular Birthmarks Foundation Forum
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Old 12-28-2010, 01:58 AM
LWilder LWilder is offline
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Join Date: Dec 2010
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Default 7 yr. old daughter with AVM in foot

My daughter has an AVM in her left foot. She first started limping when she was only 15 months old. The past 6 years have been marked by periods of pain, constant limping, numerous orthopedists and other specialists in attempts to diagnose her. After 8 MRIs, CTs, x-rays, and 3 surgeries (done by 2 different surgeons) ... the last diagnosis was AVM. The last surgery was in Jan. 2010 ... she's had an MRI in Aug and another one last week. Our orthopedist says that there is still something there, which is not surprising since she has had a lot of pain. She wakes up in the middle of the night and crawls into my bedroom crying because of the pain. We are in the process of yet another dr. search. I see lots of people who have seen Dr. Yakes and also Dr. Barrows. I plan to send my daughter's file to these 2 drs. Does anyone have any other suggestions or any other information to help us out? I also see many comments about the cost of Dr. Yakes ... doesn't insurance pay for the bills? Thanks in advance for your help! This has been a frustrating road to travel.
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