2 week old with lower lip H, does anyone have experience with topical propanolol? - Vascular Birthmarks Foundation Forum
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Old 04-08-2011, 01:11 AM
Jenni Jenni is offline
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Default 2 week old with lower lip H, does anyone have experience with topical propanolol?

Hi, I am new to this website, my 2 week old daughter was diagnosed with a lower lip hemangioma yesterday. I am very concerned and am trying to learn as much as I can. Our doctor is Dr. Drolet at Children's Hospital of Wisconsin. Right now the H is just a red mark under her lip on the right side, but it extends down the inside of her lip. The doctor says that she will most likely require treatment and will possibly start topical propanolol very soon. Does anyone have experience with topical propanolol verses the oral medication, especially in the mouth/lip region? Also, if anyone has a child with a lower lip hemangioma and could describe your experience (progression, treatment, etc.) it would be greatly appreciated! Thanks.
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Old 04-08-2011, 04:58 AM
RUBI GARCIA RUBI GARCIA is offline
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Hi Jenni, my daughter has a lower lip hemangioma, she's 18m now, but her H came in within 1 week of being born, by 2 1/2 m the H was ripping her skin, and we were having problems nursing. Finally we took her in to Dr. Stuart Nelson, in Irvine, CA. He immediately sent us over to CHOC (Children's Hospital of Orange County) and there they gave her propanolol, and 2 other meds, we didn't try the topical medication, but I'll let you know the meds worked fast, and within 2 months the H was gone, only left some red color and a deflated side of the lip, nothing that can't be fixed with plastic surgery. Unfortunately her H is stubborn and it came back, it's not growing anymore, but we're still in this journey. I'm glad they gave her the propanolol, her lip didn't ripp anymore and she was a happy camper once she could nurse. Hope this helps.
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Old 04-09-2011, 12:10 AM
nickbar nickbar is offline
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Hello, I just wanted to say hello and please feel free to email me directly if you need any help.
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