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  #1  
Old 05-15-2011, 03:52 AM
emilygallese emilygallese is offline
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Default nervous new mom.....

Proud to welcome our first back in february, but my darling little peanut has what I think is a large hemangioma, (about the size of a cherry) my doc keeps saying, no worries it will go away, but its on her precious little face and I am not sure what to do.... Any advice from others in my situation? Please help! My pictures are too large to upload, but the H is right between her eyes, its very raised and swollen, and growing sooooo rapidly! Thank you.
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Old 05-15-2011, 01:18 PM
missy missy is offline
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Hi and welcome!

You can certainly get a second opinion. Where are you located? We can help you fond a doc.

Send photos to contact @birthmark.org and i will post them.

Missy

Last edited by missy : 05-15-2011 at 01:21 PM.
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Old 05-15-2011, 05:40 PM
twinmommy twinmommy is offline
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Quote:
Originally Posted by emilygallese View Post
Proud to welcome our first back in february, but my darling little peanut has what I think is a large hemangioma, (about the size of a cherry) my doc keeps saying, no worries it will go away, but its on her precious little face and I am not sure what to do.... Any advice from others in my situation? Please help! My pictures are too large to upload, but the H is right between her eyes, its very raised and swollen, and growing sooooo rapidly! Thank you.
IMO, if it is growing rapidly and on the face, get a 2nd and get going on treatment. My ped. (at first) said "wait and see) but my daughter's grew so fast it took over her entire cheek in just 4 weeks. I pushed to get to see a specialist and have the ball rolling.
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Old 05-15-2011, 09:10 PM
emilygallese emilygallese is offline
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Thank you missy, I am sending a couple pics to you, if you would take a look then repost them for me so other parents can look and comment on, that would be great. Any insight is greatly appreciated. We are located about 40 min east of albany ny. I am approx. 3 hours from boston and 5 hours from nyc. Any reccomendations of doctors in that area?
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Old 05-15-2011, 11:39 PM
missy missy is offline
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You have a ton of options in that area:

http://birthmark.org/node/47

Try our Ask the Expert feature at

http://birthmark.org/experts.php and ask Dr. Levitin for his advice.

Pics are attached!! She's a cutie!

Missy
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  #6  
Old 05-16-2011, 02:44 AM
KatieG KatieG is offline
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Emily, she needs to be seen. I saw Dr. Waner in NYC and he was awesome. You can contact me if you'd like. My daughter had a similar compound hemangioma on the top of her head that was growing rapidly as well.
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Old 05-17-2011, 12:18 AM
emilygallese emilygallese is offline
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KatieG- what kind of tx did your daughter have? How old was she when you started? Thank you for taking time to post, How did you initially get in touch with dr waner?
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Old 05-17-2011, 02:40 AM
KatieG KatieG is offline
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Quote:
Originally Posted by emilygallese View Post
KatieG- what kind of tx did your daughter have? How old was she when you started? Thank you for taking time to post, How did you initially get in touch with dr waner?
I actually emailed him pictures of her when she was 7 weeks old showing him the progress. He emailed me back immediately. Told me to call him on his cell, etc. Very nice.

We met with him when she was 3 months old and he told us our options. She had it removed at 4.5 months old. Let me know if you have any other questions!
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