possible venous malformation in finger - Page 2 - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary Gala Friday, October 10, 2014 in New York City

VBF 2014 Annual Conference Saturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > AVM Help > AVM Help and Resources

Reply
 
Thread Tools Display Modes
  #11  
Old 07-26-2011, 04:22 AM
Karyng Karyng is offline
Junior Member
 
Join Date: Jul 2011
Posts: 1
Default

Hi Ms Penguin, I am 62 years old and have had an AVM in my middle right finger for as long as I can remember. It did not show up as a problem until I was in my late twenties.
I have had an angiogram where they inserted a small spring in one of the veins to block it off. Trouble with this is the AVM is in the tip of my finger and they could only get to the base. This seemed to have fixed the discolouration in that part of the finger but they said that I had too much of a mess of veins in the fingertip to be able to do any more. It is gradually getting worse and I am looking at the only option given to me which is amputation.
I have read on the internet about radiosurgery but I am not able to find out if that will work in this situation. I would welcome any new information you might find.
Thanks
Karyn
Reply With Quote
  #12  
Old 07-26-2011, 11:22 AM
missy missy is offline
Administrator
 
Join Date: Apr 2006
Posts: 1,724
Default

Hi and welcome!

You might benefit by asking one of our experts: http://birthmark.org/experts.php and seeing what their response is.

Missy
Reply With Quote
  #13  
Old 07-29-2011, 05:10 PM
ericinfo ericinfo is offline
Junior Member
 
Join Date: Mar 2010
Posts: 12
Default

email dr. levitin a picture of it. he's great.

he did my surgery.

drlevitin at gmail.com
Reply With Quote
  #14  
Old 05-09-2013, 05:46 AM
sberry sberry is offline
Junior Member
 
Join Date: Feb 2013
Posts: 1
Default

Quote:
Originally Posted by joedmond View Post
Okay, I have a similar situation and I sincerely hope that you have an MRI and ultrasound done before you proceed. I have an av malformation in my left thumb and will undergo my first treatment and arteriogram this Wednesday. My primary first referred me to an orthopedic surgeon who then referred me to a hand surgeon who then referred me to Dr. Antonacci at Carolinas Medical Center in Charlotte, NC. Dr. Antonacci worked in Boston and performed an average of 5 of these surgeries on av malformations per day. He tells me that malformations can be mistaken for hemegiomas and some doctors even administer steroids resulting in the loss of a limb. Basically, although this is anything but, my malformation occurred when my arteries and veins formed together without conjoining capillaries. Anyway, my point is... PLEASE make certain of exactly what you're dealing with before your child goes under the knife. You'll want to know how experienced your surgeon is in this particular area. How successful he or she has been with past surgeries. What procedures will they use? Will there be an angiogram or artereogram which involves a catheter through the groin. And most importantly, will the body part operate like normal after the operation and how will it look?
Do you have an email that I can contact you at? I really want to hear more about your situation. I am going through such a difficult time dealing with vascular malformation on my fingers. It has spread so much throughout my fingers that a doctor recommended that I do nothing because any kind of treatment or surgery would be too risky. However, I just cannot sit here and watch it get worse.
Reply With Quote
  #15  
Old 05-27-2013, 03:56 PM
dancermom dancermom is offline
Member
 
Join Date: Jun 2012
Posts: 44
Default Do you belong to AVMSurvivors

Sberry, there are a good number of members at AVMSurvivors who have avms or vms of the hand. Wayne Yakes in CO and Robert Rosen in NY was the most often recommended doctors for hand avms. If you join, you can open a discussion and ask for other recommendations.
Reply With Quote
Reply


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Venous Malformation support blamb AVM Help and Resources 12 03-24-2013 01:12 AM
Venous Malformation gina0291 AVM Help and Resources 14 09-30-2010 01:52 PM
New Diagnosis for my 3yr old- venous Malformation Maher2006 AVM Help and Resources 3 05-08-2009 06:47 PM
MOVED: possible venous malformation in finger imported_missy Announcements 0 02-11-2005 01:19 AM
Multi-focal Venous Malformation Gayle AVM Help and Resources 9 11-11-2003 03:49 PM