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  #11  
Old 08-09-2011, 01:03 PM
HLA76 HLA76 is offline
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I talked to the nurse last week and she told me to put Vaseline on it and to keep an eye on it. We have an appointment on Thursday, so she was hoping to make it until then. She told me if it got worse or started bleeding to call and they would get him in sooner. Luckily, it looks like we will make it to Thursday. It actually looks like his H has gottten bigger, even with the 40cc of steroids they injected last week. We were told if that didn't work we would switch treatments.

I was wondering, do doctors always hospitalize when starting propalonol?? I'm trying to figure out what to expect.
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  #12  
Old 08-09-2011, 05:08 PM
nickbar nickbar is offline
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There was a big discussion at the last California conference regarding hospitalization for starting beta blockers. There was one specialist that felt it was not necessary. However, the majority of the specialists felt it was a precaution to make sure the child is monitored as treatment starts.
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  #13  
Old 08-09-2011, 06:58 PM
HLA76 HLA76 is offline
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A friend of mine is a nurse at Children's Memorial and she told me that she typically sees the child stay at least one night. My husband and I are planning that he will have to be hospitalized.
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  #14  
Old 08-12-2011, 06:00 PM
HLA76 HLA76 is offline
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I went to the ped derm yesterday and she decided to start propralonol. Children's Memorial requires extensive heart testing first, so he had his EKG last night and is currently hooked up to a holter monitor for 24 hours. Once we get the results, we set up a time to be admitted for 36 hours. I'm soooo happy that this will be taken care of!!!!
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  #15  
Old 08-12-2011, 11:01 PM
KatieG KatieG is offline
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Glad you are making progress!
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  #16  
Old 08-13-2011, 12:22 PM
vfurey vfurey is offline
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I am wondering how large your sons H is and how old he is. I have a 6 week old with an H on her upper lip. It is relatively small (not quite as big as a pencil eraser) and is flat. we just saw the pediatric derm from children's and she is not suggesting any treatment at this time. Did you initially try no treatment and later start the injections or did she start injections right away?
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  #17  
Old 08-14-2011, 02:27 AM
HLA76 HLA76 is offline
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His is a little larger than a pencil eraser, but is a rather large bump that starts on his lip and has spread into his mouth almost up to his gum line. His pediatric derm was concerned about the skin of the lip getting too deformed. From what she said, the skin on the lip does not bounce back very well after being stretched. She started the steroid injections at his first visit. It was supposed to flatten the h, but it only continued to grow. We did this 3 times, getting up to 40cc injected in his lip, with no luck.

On the other hand, my son also has a strawberry birthmark on his belly. He has had that one since he was 2 weeks old. We have done nothing with it, but keep an eye on it, and it is starting to lighten up.

If you are questioning your doctor, there is nothing stopping you from getting a second opinion. Also, if it is flat and isn't causing an problems right now, maybe wait and keep a close eye on it. Watching my son get the injection in his lip was horrible-especially the last one. It caused his lip to swell up, bruising, discomfort, and he was VERY fussy afterward.

I'm not sure if this helped you at or or just confused you more. Best thing is to follow your gut!!!!
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