? About Topical Timolol for hemangioma - Page 3 - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  

1994 - 2014 Celebrating 20 years with 75,000 networked into treatment, over 3,000,000 views monthly on our world wide websites, virtual chapters on 6 of the 7 continents in the world, 500 families provided free lodging while seeking a medical opinion or treatment,over 400 conference scholarships awarded, 200 Day of Awareness events, 15 conferences, 12 programs (including our Ask/Accept Anti Bullying Program),10 walk/runs, 6 research projects funded, 4 physician education grants awarded, 4 college scholarships awarded, 3 Galas, and 2 International Missions Trips with over 300 treated by our international team.
Donate to VBF

Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Help and Resources for Hemangiomas

Thread Tools Display Modes
Old 05-15-2011, 05:25 PM
twinmommy twinmommy is offline
Join Date: Apr 2011
Posts: 32

My daughter started timolol 10 days ago, which isn't long, but just a note that we have seen zero side effects. She will start systemic meds in about 2 weeks, we are awaiting results from blood tests, ekg, etc. because she is only 6 weeks old. Her H. is very large and taking over her entire cheek. Since the timolol, she has started opening the eye on the side of the H. Before tim. she was favoring that eye and keeping it mostly closed.
Reply With Quote
Old 07-10-2011, 05:15 PM
Tallulahsmom Tallulahsmom is offline
Junior Member
Join Date: Jul 2011
Posts: 1

My dd is 7 weeks old and has a deep H (cashew sized) on her right eyebrow that was growing quite rapidly down onto her eyelid. It was growing so quickly that each morning it was significantly larger and more purple. So after seeing the opthomoligist we started Timolol 2 days ago. Our Dr. Suggested the topical first because my dd is so young, but he warned us that that it may not absorb through the skin enough to reduce the swelling. I do think though it has defiantly think the Timolol has slowed the growth if not halted it. I am very encouraged by what I have read here and what we have experienced so far.
Reply With Quote
Old 07-11-2011, 08:32 PM
mortman mortman is offline
Junior Member
Join Date: Aug 2010
Posts: 21

We use the topical version on our son's "diaper area" hemangiomas (he has several pea to quarter size ones on his bottom, by the rectal opening, and on his genitals). They have stopped ulcerating and appear to be less red than before. They aren't really shrinking but we are happy just to have none that are bleeding!
Reply With Quote
Old 08-03-2011, 06:11 AM
csp178 csp178 is offline
Junior Member
Join Date: Aug 2011
Posts: 2

My 6 month old DD is currently prescribed the gel for her eyelid hem. We have only been on it a week but no progress so far.
Reply With Quote
Old 08-31-2011, 01:34 AM
momof3inpa2009 momof3inpa2009 is offline
Senior Member
Join Date: Dec 2009
Location: PA USA
Posts: 108

My daughter is now on the timololol. It seems to keep the swelling down.
Deep hemangioma on left eyebrow towards nose
Started propanolol Feb. 11th, 2010
Off of propanolol aprox. June 2011
Takes 3 doses per day at 1.3ml
2nd Weaning of prop. not a success back on it March 22. Only one dose of 1.3ml now Baby girl is 19 months old Did Timolol gel for awhile, stopped, & back on - 4 years old. Off of Timolol -doesn't seem to be doing anything. At this point we have surgery scheduled for April
Reply With Quote

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump