Hair on Hemangioma? - Vascular Birthmarks Foundation Forum
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  #1  
Old 11-17-2011, 07:29 PM
sporty sporty is offline
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Default Hair on Hemangioma?

My daughter developed an H a few days after birth. We saw a dermatologist who wants us to see a specialist with more experience with Hemangiomas. Her H started out as a dime size red mark-not raised-and grew til about 2 weeks ago (9 weeks old). It has since started going gray and gets dark spots around it that come and go. I was wondering how many who have done the "wait and see" approach have seen long normal hair grow from the H after it disappears? I also was wondering if any of you know if medical intervention will be needed if it has started the involution phase? Plus, how long before the puffiness starts to go down? Thanks all!

http://s1126.photobucket.com/albums/...rent=9-15a.jpg
http://s1126.photobucket.com/albums/...ent=11-16f.jpg
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  #2  
Old 11-17-2011, 07:37 PM
sporty sporty is offline
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http://s1126.photobucket.com/albums/...ent=11-16f.jpg
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  #3  
Old 11-17-2011, 11:03 PM
missy missy is offline
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Hi and welcome!

Other parents will be in soon to answer that... I honestly have no idea. I would think that, at least, the placement would be where she could hide it pretty well.

Just wanted to say hi!!

Missy
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  #4  
Old 11-18-2011, 05:29 PM
KatieG KatieG is offline
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My daughter had a hemangioma on the top of her head and we had it removed so it would not interfere with her hair line. She did have some hair growing out of it at the time, but it was towards her hairline in the front so we decided to not wait it out.

Where are you located? Have you seen a specialist? They would be more informative as to how it will affect her hairline later on.
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  #5  
Old 11-18-2011, 11:03 PM
sporty sporty is offline
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Quote:
Originally Posted by KatieG View Post
My daughter had a hemangioma on the top of her head and we had it removed so it would not interfere with her hair line. She did have some hair growing out of it at the time, but it was towards her hairline in the front so we decided to not wait it out.

Where are you located? Have you seen a specialist? They would be more informative as to how it will affect her hairline later on.
I emailed Dr Levitin pictures and he recommends surgery after she turns 6 months. At what age did your LO have surgery? We live in NEPA about 2hrs from NYC.
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  #6  
Old 11-22-2011, 01:52 AM
KatieG KatieG is offline
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Quote:
Originally Posted by sporty View Post
I emailed Dr Levitin pictures and he recommends surgery after she turns 6 months. At what age did your LO have surgery? We live in NEPA about 2hrs from NYC.
My daughter had hers removed at 4.5 months by Dr. Waner in NYC. I live in the NYC area. Let me know if I can help in any way. My daughter is now 19 months old and you can't even tell she ever had anything on her head at all!

Have you contacted Dr. Waner? He is awesome! We still see him for issues my daugther has on her leg. Feel free to email me if you have questions: katiegalvin02@yahoo.com
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  #7  
Old 11-22-2011, 11:17 PM
ScarlettsMommy ScarlettsMommy is offline
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Hi there. My daughter had a very similar hemangioma, & like the other poster we had her hemangioma removed, but she was 2 when we had it done. I waited & waited for it to "go down" but it was not going anywhere. There was very faint hair growing out of it, but for what it's worth my daughter did not have much hair at the time. Dr. Levitin said that if we did not remove it that there would be extra skin/fatty tissue in it's place if it did somewhat go away on it's own. We traveled from Kansas to NY for the surgery, worth every penny.

Scarlett @ 8 months

[IMG][/IMG]

present day

[IMG][/IMG]
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  #8  
Old 11-24-2011, 02:20 AM
sporty sporty is offline
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Thanks everyone. We will be going to see Dr. Levitin in a couple of months and see how her H goes. Dr. Levitin says the surgery is completely covered by insurance so we will probably go that route if it doesnt start to recede on its own.
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  #9  
Old 11-24-2011, 11:49 AM
missy missy is offline
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You will find Dr. Levitin to be awesome, I promise!

Keep in touch and make sure you let us know how things are going!

Missy
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