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  #1  
Old 11-29-2011, 11:30 PM
millbrae_mommy millbrae_mommy is offline
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Default New Here, Questions about Birthmarks

Hello, I came across this sight upon doing research on baby birthmarks. When my daughter was born she had some marks on her face, we were told that it was bruising from a speedy delivery and that they would go away within a couple of weeks, well they didn't. At around 2-3 weeks a new mark appeared above her eyebrow. On her eyelid and nose the marks were lighter when born but have darkened since, she is now 6 weeks old, I have provided 2 pics incase anyone might have any advice or info. Tomorrow we go to the doctor to hopefully get a referal to a Vascular specialist. Any input/advice would be greatly appreciated, thank you.

Last edited by millbrae_mommy : 12-01-2011 at 02:58 AM.
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  #2  
Old 11-30-2011, 02:43 AM
KatieG KatieG is offline
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Those look like hemangiomas to me. See what your doc says and don't be afraid to see a specialist. There are lots of things that can be done to prevent it from growing further. Good luck!
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  #3  
Old 11-30-2011, 04:21 AM
smurph smurph is offline
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HI there! My daughter has a lip hemangioma and at 6 weeks of age it looked almost exactly like your daughter's. I would definitely go to see a Vascular Birthmark Specialist, especially because of the location of her hemangiomas... being so close to her eye and on her nose and lip. I think those tend to be a little more at risk for causing issues and tend to warrant some type of intervention. Where do you live? There is a list of great specialists on this website. Also, it would suggest sending an email with these photos to Dr. Levitin (look at the Ask the Expert page) and he will let you know what he thinks too. Glad you found this site! It has been a great resource to me over the years and I think you will find it helpful! Keep us posted!
Shannon
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  #4  
Old 11-30-2011, 01:43 PM
millbrae_mommy millbrae_mommy is offline
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Quote:
Originally Posted by smurph View Post
HI there! My daughter has a lip hemangioma and at 6 weeks of age it looked almost exactly like your daughter's. I would definitely go to see a Vascular Birthmark Specialist, especially because of the location of her hemangiomas... being so close to her eye and on her nose and lip. I think those tend to be a little more at risk for causing issues and tend to warrant some type of intervention. Where do you live? There is a list of great specialists on this website. Also, it would suggest sending an email with these photos to Dr. Levitin (look at the Ask the Expert page) and he will let you know what he thinks too. Glad you found this site! It has been a great resource to me over the years and I think you will find it helpful! Keep us posted!
Shannon
Thank you for the reply, If you don't mind me asking you, what type of treatment did your daughter have to go through and how is she doing now? I already sent these pics to Dr. Levitin and hopefully will get a professional opinion soon, I see the pediatrician later on today and i'm going to request a referal to see a specialist here in the SF bay area. I am so nervous and worried about this, thank you for the reply.
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  #5  
Old 11-30-2011, 08:54 PM
smurph smurph is offline
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Hi! When my daughter was about 10 weeks old her specialist put her on oral steroids..that was what they did a lot then (this was 6 years ago) but now they have different drugs like propanolol that they use as well that have less side effects I think. She had an ulceration on her lip at that point that was causing her a lot of pain so they were fairly aggressive in her treatment at that point. The meds worked really well to keep the growth from getting out of control. For us I really think it saved her lip line.

After that point we waited it out. We watched it slowly fade over the course of a few years (we saw a big change when she was 1-2 years old.) Then when she was 5 she had surgery to correct the scar from her ulceration and make her lip more even on both sides. Then when she was 6 she had laser to get rid of the little bit left above her lip. I think the early intervention with the meds was key for her and prevented more serious surgery.

Here's an album you can look at. Please remember that every hemangioma is different and that your daughter's may grow fast or not? Only time will tell. My other daughter has one on her hand and it was huge! It totally went away on its own...no treatment..so it can happen.

http://www.facebook.com/media/set/?s...l=a 18fd285c7

I have to say I remember really clearly being at your exact stage. The wondering and not knowing is so, so hard. I am a worrier and I was so extremely nervous and anxious about the whole thing. So please know you are not alone. The best thing to do is learn is much as you can, ask lots of questions and have a specialist observe and give you their thoughts from an early age. Then you can learn about your options and decide what seems best for your daughter. So try to take it one day at a time. Once we knew our plan of action, I felt much better.

Please keep in touch. Let me know if I can help in any way!

Shannon
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  #6  
Old 12-01-2011, 12:21 AM
nickbar nickbar is offline
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what did you find out today?
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  #7  
Old 12-01-2011, 02:58 AM
millbrae_mommy millbrae_mommy is offline
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what did you find out today?
So I took her to her pediatrician today and was told that she does indeed have Hemangioma, the doctor made an emergency referal so that she can be seen by the Vascular Birthmark Anomolies Center at the UCSF hospital in San Francisco. We were able to get an appointment this friday in the morning with their specialist. Our doctor wanted her seen ASAP by the specialist since she has marks on her lip, nose and near her eye, she told us that intervention early is much better than later. So i'm still very worried but I do feel a little better after reading about the specialists at UCSF, they seem to be very reputable and experienced in this type of situation. I'll keep you guys/gals posted, thank you for all the kind words and Smurph your daughter is so beautiful and I'm so glad she is doing much better.....

Last edited by millbrae_mommy : 12-01-2011 at 03:07 AM.
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  #8  
Old 12-01-2011, 11:24 AM
missy missy is offline
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Hey!!! That's great news! I'm so pleased with your doctor, and I know you are too! UCSF is the way to go in that area. Do you know which doc there will be your primary?

Missy
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Old 12-01-2011, 04:33 PM
nickbar nickbar is offline
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YEAH! for proactive pediatricians! I assume you will see Dr. Frieden/team. Good luck and keep us posted. If you have any questions about your options and what you find out at UCSF, let me know.

C
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  #10  
Old 12-02-2011, 01:26 AM
smurph smurph is offline
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Corinne,
You took the words right out of my mouth! Yeah for that pediatrician! Good luck with your appointment!
Shannon
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