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  #11  
Old 03-19-2012, 11:48 AM
missy missy is offline
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Please do let us know. Has your daughter had any other treatments?

Missy
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  #12  
Old 03-19-2012, 01:48 PM
Myliitlepuddin Myliitlepuddin is offline
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No nothing yet. We have been told surgery would just be a debulking procedure and would only have temporary results as it cant be completely removed and would quickly grow back. Probably resulting in her having to have regular surgery all her life with the risks of scarring. Lazer would also provide temporary relief of the vesticles that come through her lip but they reoccure regularly so is not worth doing in our case. This is our only hope at the moment.
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  #13  
Old 03-19-2012, 08:19 PM
missy missy is offline
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I hope you can come back soon with good news!!

Missy
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  #14  
Old 03-20-2012, 12:49 AM
kaykay kaykay is offline
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an admin on birthmarks.com facebook page mentioned this. it seems to be really successful but it is not for all birthmark areas. i read the same south tees link also. i was interested in checking it out
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  #15  
Old 07-09-2012, 03:44 AM
ash2887 ash2887 is offline
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http://www.ncbi.nlm.nih.gov/pubmed/21532430

Just an abstract, but though I'd post anyway.
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  #16  
Old 08-31-2012, 01:12 PM
vksheilds vksheilds is offline
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I am not sure about this treatment even I like the #missy who says short but meaningful thing that can be consider easily
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  #17  
Old 10-17-2012, 06:08 PM
Myliitlepuddin Myliitlepuddin is offline
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Smile bleomycin treatment

hi everyone,

I've not posted here for a while, so thought I would give you all an update on how my daughter is. She has started her bleomycin injections, she has had her first round and she was absolutely fine afterwards. No side affects what so ever(which was my biggest fear). were back on Monday for her second round. she will have four all together. we were told we would not see a difference after the first one but we have. there has been a small reduction in the size but the main thing is that she has had no blisters, no hemeraging or bleeding since the last injection and has been in no pain at all. so something is working on the inside. she had a cold/flu last week which is usually when it is at it's worst, but it did not change at all. were really pleased so far with the results and can't wait to see what happens when she has finished her treatment. hopefully it will all be over for us.
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  #18  
Old 10-28-2012, 06:15 PM
Myliitlepuddin Myliitlepuddin is offline
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http://www.gosh.nhs.uk/EasysiteWeb/g... pe=Attachment


thought some of you might find this link useful
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