My daughter turned 2 in April. She has been on Propanolol since 3 weeks of age. She has multiple hemangiomas. We have tried several times to wean, but no luck yet. The longest we have been off is about 2 weeks. She is on a very low dose (.25 ml/3x a day). It seems to be preventing further growth, but isn't improving any of the places that became "worse" when she was off meds. She doesn't seem to mind the medicine and hasn't exhibited any negative side effects, so for now, her derm. suggested we wait another 3 months and try again.
~Momma to Logan, 3 and Livy, 1~