Any one with AVM's of the arm and hand? - Page 2 - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary Gala Friday, October 10, 2014 in New York City

VBF 2014 Annual Conference Saturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > AVM Help > AVM Help and Resources

Reply
 
Thread Tools Display Modes
  #11  
Old 06-24-2012, 12:33 PM
dancermom dancermom is offline
Member
 
Join Date: Jun 2012
Posts: 44
Default Would you post your story on AVMSurvivors.org?

I'm so happy your surgery worked for you. There is nothing about Raskin on the AVMSurvivors site, and it sounds like there should be. Would you join and post your story there? It could help change someone's life.
Reply With Quote
  #12  
Old 10-08-2014, 11:33 AM
smritisahu smritisahu is offline
Junior Member
 
Join Date: Oct 2014
Posts: 2
Default AVM in left hand

Dear All,

I am Smriti Sahu from India. I am having AVM in my left hand stretching from the palm to the wrist. I have seen the forum and very happy to see that I am not alone suffering from this. In India, me and my parents visited a lot many doctors but we could not find a solution for this. But ater visiting this forum, I came across names of many doctors that you guys are mentioning about. I request you all if you could please provide me email id of Dr. Yakes, so that I can contact him about my problem and mail him certain snapshots of the effected area. I would be very thankful if you could do me this favour.

Thanking You
-Smriti Sahu
Reply With Quote
  #13  
Old 10-08-2014, 11:34 AM
smritisahu smritisahu is offline
Junior Member
 
Join Date: Oct 2014
Posts: 2
Default

Dear All,

I am Smriti Sahu from India. I am having AVM in my left hand stretching from the palm to the wrist. I have seen the forum and very happy to see that I am not alone suffering from this. In India, me and my parents visited a lot many doctors but we could not find a solution for this. But ater visiting this forum, I came across names of many doctors that you guys are mentioning about. I request you all if you could please provide me email id of Dr. Yakes, so that I can contact him about my problem and mail him certain snapshots of the effected area. I would be very thankful if you could do me this favour.

Thanking You
-Smriti Sahu
Reply With Quote
  #14  
Old 10-08-2014, 07:28 PM
missy missy is offline
Administrator
 
Join Date: Apr 2006
Posts: 1,729
Default

Dr. Yakes' contact information is as follows:

Dr. Wayne Yakes, Director
Dr. Nick Yee
Vascular Malformation Center
Interventional Radiologist
Swedish Medical Center
Englewood, CO 80110
303-788-4280

I have never had and cannot find his email address, though. Many physicians are not comfortable discussing cases by email.

Missy
Reply With Quote
Reply


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump