painful - any ideas????
So, I am 32 and I have a PWS from hip to toe down my leg. I had NO idea there was a group out there dealing with this. Can I say how amazing it is??? I have lived with years of doctor's visits, surgeries, marriage and pregnancy with a birthmark. Luckily for kids born these days - technology has advanced GREATLY. I do have a lot of great stories and would be happy to offer advice on a later post BUT I currently have a QUESTION.... i recently moved to texas - away from my amazing doctor - so I know I have to find a new one here. BUT i didn't know if anyone older has experienced pain with leg PWS. I work a job where I am on my feet all day - at the end, my leg is in agonizing pain, swollen and just throbbing. I don't know what to do other than to find another job - which is what I am working on. any treatment suggestions or ideas? also - is disability an option???
Thanks in advance!!! sorry for my long post.