Please help me - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  

1994 - 2014 Celebrating 20 years with 75,000 networked into treatment, over 3,000,000 views monthly on our world wide websites, virtual chapters on 6 of the 7 continents in the world, 500 families provided free lodging while seeking a medical opinion or treatment,over 400 conference scholarships awarded, 200 Day of Awareness events, 15 conferences, 12 programs (including our Ask/Accept Anti Bullying Program),10 walk/runs, 6 research projects funded, 4 physician education grants awarded, 4 college scholarships awarded, 3 Galas, and 2 International Missions Trips with over 300 treated by our international team.
Donate to VBF

Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > CMTC

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
  #1  
Old 09-10-2012, 06:44 PM
blondie02_84 blondie02_84 is offline
Junior Member
 
Join Date: Sep 2012
Posts: 1
Default Please help me

Hello everyone. My baby girl, Chloe, was born on June 18, 2012. As soon as she was born we noticed her right arm was very dark purple. The nurses and doctors at the hospital said it was as a result of birth trauma. When we took her home, it never went away. It would get worse when she was cold or crying. What was worse was when I noticed her hand on the affected arm looked bigger than the other hand. We took her to her pediatrician who immediately made an appointment for her with a pediatric surgeon at the OU Children's Hospital. The surgeon didn't know what it was so he sent us to a pediatric orthopedic doctor. He also didn't know what it was so he sent her to get an ultrasound and speak with vascular specialists. There, 3 doctors saw her and told us she had Cutis Marmorata. They said it was rare and had never seen it in the hospital before, so they took pictures to show their residents. They said that it will go away as she gets older and didn't offer any sort of information or help to us. I've been doing research and I can't figure out the difference between Cutis Marmorata and CMTC. From what I can tell, CMTC can come with other health problems. Now I'm freaking out and upset and don't know what to expect for my daughter's future. Can someone out there please help me?

*I can post pictures if I need to*

Thank you all so much!
Reply With Quote
 


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump