Treatment Advice - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment.
Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Help and Resources for Hemangiomas

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
  #1  
Old 09-13-2012, 03:42 PM
tinsea1 tinsea1 is offline
Junior Member
 
Join Date: Sep 2012
Posts: 3
Default Treatment Advice

hi, new to this forum and have been doing lots of reading here and everyone, but i am at a fork in the road and am looking for some advice.

my daughter was born in March 2012, 7 weeks early, with a barely noticable red dot on her cheek. i was told, continuously to leave it be, as i watched it grow. oh it will go away, its done growing, etc etc. if i would not have been persistent adn done my own research i don't know where we would be.

However, i was eventually referred to a peds derm in Saskatoon, we did 3 weeks of timinol...with little results and have since been on propranolol since June (when she was about 4 months old) she is now 6.5 months old and rarely sleeps. i have been adviced it could be from the medication. i would say we have seen some results....when commencing with the med she was in the hospital for 6 days, i would say we saw great immediate results...the cone type subservice swelling seemed to go down. the redness is fading and turning slighly grey.

I am curious at what point should i start looking at other treatment alternatives, ie. surgical removal or lazer. I am tired of doctors saying leave it it will go away and then the next doctor i see says oh if you would have gotten here earlier....

i just want to make sure i have all the information i can....so at the age of 2 or 3,which is the age our derm is recommended we wait til to discuss surgery or lazer...i don;t get a doctor that says oh geez if we would have seen you earlier this would be much easier, etc.

Any advice or recommendations of doctors is appreciated. i am in saskatchewan, but would be willing to travel to alberta or winnipeg.
Reply With Quote
 


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump