venolymphatic malformation of forearm , looking for anyone who has had embolization - Vascular Birthmarks Foundation Forum
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Old 12-16-2012, 06:40 PM
danielle6315 danielle6315 is offline
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Default venolymphatic malformation of forearm , looking for anyone who has had embolization

Hi i have a 9 year old recently dx with venolymphatic malformation on her r forearm. Previously thought to be a deep hemangioma that was treated with laser. We have dr. Rosen as our doc and appears embolization will be route taken. Im looking for any experiences with embolization. Success? Pain scale? Complications?
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Old 02-06-2013, 12:49 PM
dancermom dancermom is offline
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Default Arm embolizations

Hi, Danielle, there are a number of patients of Dr. Rosen's on avmsurvivors.org

If you join the Extremity AVMs group there, you can read past discussions about embolizations.
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