My 6 year old son has CMTC. - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  

1994 - 2014 Celebrating 20 years with 75,000 networked into treatment, over 3,000,000 views monthly on our world wide websites, virtual chapters on 6 of the 7 continents in the world, 500 families provided free lodging while seeking a medical opinion or treatment,over 400 conference scholarships awarded, 200 Day of Awareness events, 15 conferences, 12 programs (including our Ask/Accept Anti Bullying Program),10 walk/runs, 6 research projects funded, 4 physician education grants awarded, 4 college scholarships awarded, 3 Galas, and 2 International Missions Trips with over 300 treated by our international team.
Donate to VBF

Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > CMTC

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
  #1  
Old 07-27-2013, 02:03 AM
Eileen71 Eileen71 is offline
Junior Member
 
Join Date: Jul 2013
Posts: 2
Default My 6 year old son has CMTC.

I am new on here. My husband and I have been dealing with this for 6 years with absolutely no help with questions about CMTC. We have gone to the University of Chicago to get as much information as we could but this was in his first years, but after a few years where to you go from there, except the yearly appointments with Derm, Ortho, cardio and several others. I can not tell you how happy I am to find this. Yes, we have been to all the Doctor's but it always seems I am explaining it to them. At 6 years old there is about a three inch difference in leg length, and one leg and foot is 2 sizes larger than the other leg. I cry every time he gets his new orthotics. I'm told he can not do anything about this until about 14 years of age. At the age of 2 he went to Children's hospital in Cincinnati, where he was seen by 7 specialist. They informed me at that time that he had no heart issues. They were wrong. At 4 he had heart surgery. This was a success. He is much slower with his learning then the average child. I would love to meet some other parents that are facing these same issues and find out what if anything else I can do and just have some more support. Thank you
Reply With Quote
 


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump