Hi Shannon! We are headed to Cali in October! I heard back from Basia Joyce last evening and am filling out the registration form now. I honestly cannot thank you enough for giving me that info. I want you and the VBF team to know what a huge positive impact this tiny bit of hope is already giving us. We are beyond excited to finally be heading in the right direction and to be receiving sound advice! I am extremely grateful for this opportunity!
Hello Tanya! Glad you are coming to the conference. It is a great way to get to see the top specialists in the field all in the same place! My son was originally treated in Portland by Dr. Krol @ OHSU. Have you had a chance to see him? Feel free to email me directly if you would like to share stories and I might possibly have some advice.
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)
I have been thinking of you this weekend and hoping that you were still able to make the trip to the conference in California. I hope it is a good experience and that you are able to get some more information. Let us know how it went!!! Have a safe trip!
An international charitable
organization that networks families affected by a vascular birthmark, tumor, or syndrome to the appropriate medical professionals for evaluation and/or treatment,
provides informational resources as well as sponsors physician education, mobilizes medical missions trips, and supports research and programs that promote acceptance
for individuals with birthmarks.
Here you will find information and resources for patients and families affected by hemangioma, port wine stain,
arteriovenous malformation, capillary malformation, lymphatic malformation, Sturge Weber syndrome, Klippel-Trenaunay syndrome, and any other type of vascular birthmark
Information accessed through the VBF is presented in summary form
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