Diagnosed with Hemangioma but I'm 17. Check the picture. - Vascular Birthmarks Foundation Forum
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  #1  
Old 09-14-2013, 02:39 AM
petyper petyper is offline
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Default Diagnosed with Hemangioma but I'm 17. Check the picture.

So first off I was really scared what is it, I am actually 17. I think I have this maybe for few years, but I am not sure. It's totally not before 6 years of birth cause I have naked pictures of me until that age. So this is my thingy:
http://i.imgur.com/BoJPx.jpg It is positioned the right of my belly and it has dimensions of 9 mm / 5.5 mm

I was really wondered if it can be a deadly melanoma so I went to a dermatolog (A really good specialist). Without even checking it with a dermatoscope he said its without any doubt a Hemangioma. I told him that I have it like 3 years ago (even if I'm not sure), but not when I was born. He said that I sill should not worry about it and that its just a waste if we check it with dermatoscope. I agreed. When I came back I researched a bit and I truly found out that its not a hemangioma cause it only appears on birth and its a birth mark. So is this a vasulcar malformation, or can it be something else? Also it got slightly bumpy last 9 months.
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  #2  
Old 09-14-2013, 01:05 PM
smurph smurph is offline
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Hi! It's definitely not a hemangioma in my opinion with everything you have described and based on how it looks. I would get a second opinion from another dermatologist and tell them exactly what you just posted here. I'm not sure where you live, but if possible I would be persistent until you get some answers, so you will know what it is and if anything should be done about it. Good luck! Let us know if you find out anything!

Shannon
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Old 09-14-2013, 01:47 PM
petyper petyper is offline
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I didn't actually said that cause I thought that its a bit dumb, but I went to another specialist before this one and he still confirmed that its a hemangioma due to the look. Btw, what do you think? What can it be?
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Old 09-14-2013, 02:41 PM
missy missy is offline
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But you were right in the first place and BOTH of those doctors were mistaken. It is NOT an hemangioma, as they all involute before adulthood.
And other vascular birthmarks have different treatment options than hemagiomas, so it's important to get it correctly diagnosed.

It could be a vascular malformation, yes. Without something to give it some scale, it's hard to tell what size it is.

Where are you located? It's best that you see a specialist.

You could go to http://birthmark.org/experts.php . I would write to Dr. Levitin there and send him that picture.

Missy
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Old 09-14-2013, 02:46 PM
petyper petyper is offline
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Quote:
Originally Posted by missy View Post
But you were right in the first place and BOTH of those doctors were mistaken. It is NOT an hemangioma, as they all involute before adulthood.
And other vascular birthmarks have different treatment options than hemagiomas, so it's important to get it correctly diagnosed.

It could be a vascular malformation, yes. Without something to give it some scale, it's hard to tell what size it is.

Where are you located? It's best that you see a specialist.

You could go to http://birthmark.org/experts.php . I would write to Dr. Levitin there and send him that picture.

Missy
I said that its 9 mm / 5.5 mm thats like 0.9 cm by 0.55 cm. Its located on the right side of my belly 15 cm from it.
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Old 09-14-2013, 04:58 PM
petyper petyper is offline
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So 2 specialists for melanoma told me that this is a pure hemangioma (even tho it appeared later in life). Should I just go to one of them again and ask them for a dermatoscopy, I have no other better specialist for skin in my town. And will dermatoscopy help that much, cause I rode that it only zooms 35% of it so if its just like that then it'll be probably enough for them to see it with naked eye? As for any doctors or experienced people here, what do you think this can be other than Hemangioma? A vasucal malformation or something more scarier just like skin carcinoma?
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  #7  
Old 09-15-2013, 03:09 AM
smurph smurph is offline
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I would definitely agree with Missy in terms of sending an email/photo to Dr. Levitin explaining what you have posted here. That would probably be a good start.

Also, where are you located? We might be able to help you find other specialists in your area that might be of some help. I would probably try to find a different doctor than the ones you have already seen, if possible. If you just can't, I would go back to one of the originals and tell them about your questions and concerns and what you have found out in researching it a bit more and see what they say??? It's ok to be persistent. It is safe to say it is not a hemangioma or portwine stain. Although, I have heard that some doctors do refer to all vascular lesions as "hemangiomas" even though that they are not truly hemangiomas. So I'm wondering if that might be the case here?? Nevertheless, I think it is important to get a correct diagnosis so that you can find out if treatment is necessary and so you will be able to have peace of mind (of knowing if it is a vascular lesion or something else.) I think it is hard not to worry, when you have lots of questions remaining.
Good luck and keep us posted!
Shannon
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  #8  
Old 09-15-2013, 04:34 AM
petyper petyper is offline
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I am actually really persistent at this, as I said I went to the 2 best specialists in my area and the second one was even a collegue of my mother, so I really believed him and I still do. I guess he uses the term Hemangioma for vascular malformations. Anyways I wrote to the Dr. Levitin, and I am expecting an answer, anyone have a idea of how much time it'll take to get a answer back? Also, yes I am really, really obsessed about this just cause there is no real answer also I am always trying to get my memory back if I had this thingy for more than 5 years, but no memory is coming back to me, I am thinking of a dermatoscopy might be the best course now. Anyways thanks for the help, I would tell you guys what's happening when I'll have the latest news.
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Old 09-15-2013, 07:57 PM
petyper petyper is offline
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Also I am waiting for an answer, meanwhile I am hoping its nothing cause I rode that if you have hair on the thingy its for sure not something to be scared from and I do have 2 hairs coming out of the red thingy. So yeah.
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