Lymphangioma of the leg - Page 3 - Vascular Birthmarks Foundation Forum
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Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Lymphatic Malformations (also known as cystic hygroma and lymphangioma)

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Old 10-22-2013, 04:16 AM
mahisehar mahisehar is offline
Junior Member
Join Date: Oct 2013
Posts: 1

I have a 2 1/2 year old that was born with both macrocysts and microcysts around his right ear and neck. Recently, they have grown causing some minor issues. We are being told that he will have to undergo sclerotherapy or surgery. Can anyone give me the pros and cons for both if you have experienced either for your little one? My husband and I are thinking surgery so our son only has to go through one procedure and can be a done deal for a while. Has anyone opted for the surgery? If so, how did your little one deal with a long, extensive surgery like this? Thank you all.
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Old 03-29-2014, 08:04 PM
Lwinston Lwinston is offline
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Join Date: Mar 2014
Posts: 1
Default My Lymphangioma

Hello my name is Lisa I was diagnosed almost 3 years ago with having a Lymphangioma in my left pelvis groin and thigh. I am 23 years old and I have had 3 scalerotheropies done on this area but nothing is helping. The pain continues to get worse because my vascular tumor is wrapped around my femoral nerve and artery. Is there anyone on here who knows where I can find a great surgeons who will help me cut this out of my body.
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Old 03-30-2014, 01:28 PM
missy missy is offline
Join Date: Apr 2006
Posts: 1,757

Hi and welcome

Go to and get in touch with Dr. Levitin. If he can't help you, he will recommend someone who can.

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