AVM causing bone problems...Need some help - Vascular Birthmarks Foundation Forum
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  #1  
Old 04-08-2014, 11:28 PM
L_Lopes L_Lopes is offline
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Post AVM causing bone problems...Need some help

Hello Im new in this site. Ive find this site on one of my researches and i think this is very helpful. Because my baby with 25 days now saddly was born with an AVM in her right forearm that is causing lesion on her radial bone. Doctors said that we need to wait and see what is the evolution of the lesion but i was hoping for a second or third opinion to see if anyone knows anyone with this kind of AVM. The doctors dont have certain about whats going to happen and because im from Portugal there arent many doctors with experience in AVM.
I already have sent a message to doctor Rosen 2 weeks ago but i didnt get any answer yet. How long we usually need to wait for an answer?
Im just a father looking for the best treatment for my little baby.
Thank for your time.
Best regards.
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Old 04-09-2014, 12:45 AM
missy missy is offline
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Hi

You should have gotten an answer from Dr. Rosen by now. I will look into that.

In the meantime, try writing to the European expert, too.

Missy
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Old 04-09-2014, 03:07 PM
L_Lopes L_Lopes is offline
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Quote:
Originally Posted by missy View Post
Hi

You should have gotten an answer from Dr. Rosen by now. I will look into that.

In the meantime, try writing to the European expert, too.

Missy
Hello Missy

Ok thank you so much for your help.
I already tried an european expert in liverpool but still no answer
I sent Dr. Rosen a message because ive read that he has experience in AVM in the arms or legs and i hope he can help our family.

Thank you for your quick answer Missy.
Best regards
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