Update / Surgery coming up/ Updated helpful blog
Well just wanted to update; after this 5 year journey our little one is having surgery in less than two weeks. You can read my updated blog here:
Please wish us luck!
I am so glad that I have kept track of everything in my blog because it not only helps me to remember things but helps others out there!
Deep hemangioma on left eyebrow towards nose
Started propanolol Feb. 11th, 2010
Off of propanolol aprox. June 2011
Takes 3 doses per day at 1.3ml
2nd Weaning of prop. not a success back on it March 22. Only one dose of 1.3ml now- 19 months old Did Timolol gel for awhile, stopped, & back on - 4 years old. Off of Timolol -doesn't seem to be doing anything. Surgery was a success!!! April 2014