I am a 30 year old female and I just found this site. I can't beleive what I am reading. I am considering treatment only now because I was always told by specialist to leave this AVM alone. A vascular surgeon did attempt to "pin" close feeders to my AVM only to have returned fully revascularized two years ago. I woluld love to here from others with information or experiences.
An international charitable organization that networks families affected by a vascular birthmark, tumor, or syndrome to the appropriate
medical professionals for evaluation and/or treatment, provides informational resources as well as sponsors physician education, mobilizes medical missions trips, and
supports research and programs that promote acceptance for individuals with birthmarks.
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