Growing up with a PWS - Vascular Birthmarks Foundation Forum
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Old 11-12-2004, 12:57 AM
hankbartenbach hankbartenbach is offline
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Join Date: Oct 2002
Location: Nebraska
Posts: 533
Default Re:Growing up with a PWS

Hi Kathryn,

I just wanted to let you know if you need any info about PWS to put into your thesis let me know.
I know what you have gone thru and what will go thru.
Even though I am only 22, but I know what it is like to have surgery after surgery with little results. After 14 years of laser treatment, not even 1/4 of my birthmark has been removed. Hopefully Dr. Waner will be able to change that in Jan or Feb.

Talk to you later.

Hank
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