My Story - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  

1994 - 2014 Celebrating 20 years with 75,000 networked into treatment, over 3,000,000 views monthly on our world wide websites, virtual chapters on 6 of the 7 continents in the world, 500 families provided free lodging while seeking a medical opinion or treatment,over 400 conference scholarships awarded, 200 Day of Awareness events, 15 conferences, 12 programs (including our Ask/Accept Anti Bullying Program),10 walk/runs, 6 research projects funded, 4 physician education grants awarded, 4 college scholarships awarded, 3 Galas, and 2 International Missions Trips with over 300 treated by our international team.
Donate to VBF

Go Back   Vascular Birthmarks Foundation Forum > Individuals Living with Birthmarks > Living with a birthmark - my story

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
  #1  
Old 04-29-2005, 04:10 PM
bfull
 
Posts: n/a
Default My Story

Hi everyone! I am new here and* I thought I would share my story of growing up with a hemangioma....

I was born in 1980, I was born with 3 birthmarks ...one on my neck and one on each leg...and a strawberry on my head.* Two of my birthmarks went away and the one on my right leg has always been with me.* This birthmark covers 3/4 of my leg and has slowly grown in size over the years.* My parents really did not show concern until I started having pain in my leg.* I was refereed to a specialist at our local children's hospital when I was 13.* They told me that I would have to go through numerous painful operations in order for me to correct my problem....and also informed me that I may never walk normal again after the operations.*

I only wear shorts around the house and on the rare occasion that I wore shorts to school the kids would always ask me if I had gotten burnt or something.* The coloring I am OK with...it's just the swelling that really bothers me...even if I am wearing jeans you can tell that there is a big lump there.* I have always bruised easily on my leg and it makes me very self conscious.*
My parents decided against the operations (mainly due to the fact that my health was not at risk and it would be purely cosmetic) but I wound up on bed rest when I was pregnant for a fear of blood clots in my leg.* I wear a medical stocking on my leg when it starts to get that crampy feeling and so far so good.*

All in all I would say that I led a normal childhood...everyone has a blemish..some bigger than others.* I still played sports in school and I still had lots of friends!*
Reply With Quote
 


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
My story of living with a Giant Hairy Nevus on my back!! ocongr Living with a birthmark - my story 15 03-21-2013 08:03 PM
My story... sweet pea Living with a birthmark - my story 5 01-04-2010 06:28 AM
Our Baby's Story foxsmom Living with a birthmark - my story 1 06-27-2009 10:02 PM
Jacqui's Story - Life With a Lymphatic Malformation jacquismom Living with a birthmark - my story 4 06-19-2008 08:03 PM
My Story TPC Living with a birthmark - my story 1 02-28-2006 12:41 AM