treatment or not?
I have been trying to research AVMs and the treatment options and stubbled upon this website.* I, like so many of you, am sad to see that so many of you struggle with this problem, but I am glad to have someone to talk to.
I am 24 years old and was diagnosed when I was 2 years old with 2 AVMs on my left thigh, just above my knee.* They are quite large but thankfully only in the fatty tissue and do no involve any muscle.* I have had them emoblized before which significantly reduced the size, pain etc.* In the past few years the pain has come back.* I am still able to do most of my normal activity but sometime I experience severe pain.* My husband and I are also planning to start a family in the next couple of years.* We are concerned how pregnancy might effect the AVM and how the AVM might affect my pregnancy.* Because of this I went back to my doctor at UCLA who told me she would like to see both of the AVMs removed completely.* She said she would like to do another embolization and then have a Plastic Surgeon extract the AVM.* I went for a consilation with the Plastic Surgeon who told me he can most likely remove all of the AVM but he can not guarentee the pain would go away.* He said I will have a lot of scar tissue and therefore, residual pain.* He also said that most likely the skin on my leg from where he removes the AVM would die and he would have to take skin from another part of my body to replace it, making a skin flap.
I am very nervous about all of this.* Idealy I would love to have the AVM removed and be done with this whole thing.* However I do not want to go through all of this and not be ridding myself of the pain.* I am also skeptical about the skin flap.*
Has anyone had their AVM removed completely?* If so, was there alot of residual pain?* Has anyone been pregnant with an AVM?
If anyone has any thoughts or information on any of this I would greatly appreciate your imput.* Thank you!