Lymphangioma - Page 2 - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  

1994 - 2014 Celebrating 20 years with 75,000 networked into treatment, over 3,000,000 views monthly on our world wide websites, virtual chapters on 6 of the 7 continents in the world, 500 families provided free lodging while seeking a medical opinion or treatment,over 400 conference scholarships awarded, 200 Day of Awareness events, 15 conferences, 12 programs (including our Ask/Accept Anti Bullying Program),10 walk/runs, 6 research projects funded, 4 physician education grants awarded, 4 college scholarships awarded, 3 Galas, and 2 International Missions Trips with over 300 treated by our international team.
Donate to VBF

Go Back   Vascular Birthmarks Foundation Forum > AVM Help > AVM Help and Resources

Thread Tools Display Modes
Old 06-27-2005, 08:29 PM
Posts: n/a
Default Re: Lymphangioma

Hello again,
Just want to add that I do not beleive Ok-432 (Picibanil) injection is for everyone, or that everyone should try it, It is a decision that should be made by everyone involved. With a dr you trust. For our family it was the right time to try it. Iowa study does exclude many, but help a lot. More research is needed in this county, OK-432 was start in Japan. A very smart man, who I am very sad to say died in 2003 at the age of 55. My child is very lucky her cyst is minor compare to many. But hope is on it's way. Iowa research was just started in 2000. It may not be a cure but at least there is hope out there. When we were first told that Tessa had LM we could not find support groups or research papers with much info. Today there is at least two group for just LM (cystic hygroma), not to forget about this one. Thank you so much for listening LOra
Reply With Quote

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Looking for lymphangioma or hemangiolymphangioma specialists and treatment Jeanette Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 20 09-23-2012 12:58 PM
lymphangioma in the pelvic sarfati Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 4 02-06-2009 06:13 PM
Poss VM or Lymphangioma - any relation to trauma?? mom2three AVM Help and Resources 3 07-09-2008 09:52 PM
Systic Lymphangioma here! Vegeton Youth and Teen Support 2 06-22-2006 03:23 AM
New to the board...23/male with lymphangioma of the right orbit filmguy AVM Help and Resources 2 02-18-2004 10:42 PM