Help with research for novel
I'm writing a novel. It is about a love affair between a man and a women who has a PWS on her left cheek. It follows their lives from the sixties when they are in their formative years through to the present day. Although her PWS is only a small part of the overall story, it is something that will crop up throughout and I would like to be able to offer the most sympathetic portrayal of growing up with a PWS.
I have read most of the posting on this site and done a great deal of research on the medical side. I would be very grateful for any anecdotes that people might be able to offer, coping strategies, examples of other's reactions etc and what people think having a PWS has taught them about life more widely....
I hope that makes sense and will be extremely grateful for any help....