Little help! - Vascular Birthmarks Foundation Forum
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  #1  
Old 02-20-2005, 12:56 AM
sgann
 
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Default Little help!

This is my first post, and I need a little help. We have a 3 week old girl now and she has a red birthmark on the back of her rt thigh about the size of a dime. It is round with some rough edges but they are clear edges. The color is dark red and when you press on it, it turns white then returns to red. It seems flat, but on one side is seems that it may be risen up slightly. I have read everthing the internet has to offer and this site has helped. I am now more worried than I was before because we were just told it was a birthmark and it would be ok. We go back for her 1 month in 1 1/2 week. What should I ask...Does anyone on this site have an idea of what type of mark she my have by the way I have described it? Any advice or help and thank you ahead of time.
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  #2  
Old 02-20-2005, 12:17 PM
alexasmommy
 
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Default Re: Little help!

Hi. It is very hard to give a opinion from a description. I can tell you that Vascular Malformations do turn white upon pressure and then return to normal. What you are seeing in a change in the blood flow when you press down.
PWS normally is flat. Hemangioma's can raise and grow and change in appearance. I would definately see a Pediatric Dermatoligist for a correct diagnosis. Once you know what it is, you can take a deep breathe and go from there. I know how hard it is not knowing. That is so hard.
Congrats on the birth of your little one. If you have any other questions, please feel free to ask.
What area do you live in? I live in New York.
Elena
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  #3  
Old 02-20-2005, 12:24 PM
alexasmommy
 
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Default Re: Little help!

Hi. I asked where you live because maybe someone here can give you the name of a Vascular Abnormalities Specialist or Pediatric Dermatoligist that they have had experience with. It always makes you feel better when you are given a Doctors name that someone else knows of...
Good luck...
Elena
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  #4  
Old 02-20-2005, 05:04 PM
sgann
 
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Default Re: Little help!

Thank you for your reply. I live in Georgia, and it seems that there may be two docs in Atlanta, but I will check more local in the next week. Also, which seems more severe, a PWS or a vascular malformation? I have read about depth of marks, and hers seems to be superfical since she is so young and the color is so dark that it must be close to the surface. Can you eliminate either for good if treatment is started early? Thank you again for your reply.
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  #5  
Old 02-20-2005, 06:01 PM
alexasmommy
 
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Default Re: Little help!

A pws is considered a Vascular Malformation. The two most "common" types are Port wine Stains and Hemaginoma's. There are other types also.
PWS does not go away, unfortunately. It can be lightened with laser . With the current laser technology,pws is usually not eradicated 100 percent.
A Hemaginoma is different than a pws in a few ways. A pws normally stays flat. A Hemaginoma can change in appearance and "grow". Not all do. A pws is forever, where most-but not all- hemanginoma's involute with time. They can treat a Hemaginoma with laser if the doctor feels it will be beneficial.
My advice to you would be to see a Pediatric Dermatoligist as soon as you can, so you will know what your child has. Knowledge is power. Once you know what it is, if it is a Vascular issue, you can see where you need to go from there.
I wish I could help you more. It is hard without seeing what you are talking about.
After you see the doctor, if is is a vascular issue, there are a lot of people here who can help point you in the right direction, share their experiences and provide support if needed. I am more familiar with PWS, but Corinne is a wealth of information about Hemanginoma's.
Please keep us posted.
Elena
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  #6  
Old 02-20-2005, 06:33 PM
sgann
 
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Default Re: Little help!

Thank you for the information. Just curious, can a PWS be so dark, I mean maroon red this early in its stage? Also if a Hemag happens to not grow, how can someone tell the differ between a PWS and a Hemaginoma? I know you do not have all of the answers, but it is nice to talk to someone who seems to have some idea. Just to make me feel a little more at ease. Thanks
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  #7  
Old 02-20-2005, 06:56 PM
alexasmommy
 
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Default Re: Little help!

Yes, a pws can be very dark early on. Some people have stated it appears purple in color.
A dermatoligist can definately tell by looking, what it is.
Once a Hemag starts to change or grow it does not look like pws. From what I have seen, before a Hemag starts to grow/change- is usually looks somewhat different than a pws. Obviously, not everyone is the same nor does it look the same on different people.I cant find the right words to describe what I see as the difference.
Please look at the pictures on the site here. That may give you an idea.
Most of the time a Hemag starts off looking like a red area or even a stratch. It can start off flat, but then the edges may change and it can grow.
I can tell you that I am aware of many infants that were incorrectly diagnosed at first-- doc said pws until it started to change/grow.There are not a lot of doctors that are familar with vascular issues.
Keep asking away......
Elena
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  #8  
Old 02-20-2005, 07:34 PM
sgann
 
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Default Re: Little help!

What about a venous malformation?* I read that those dissapear and turn white when pressed as well.* What are the chances her mark would be one of those?* How can you tell about a venous malformation?* Those seem to be more severe than a pws or a hem.

Also, tonight when I was changing her, I pulled the skin tight and rubbed the area. It felt as though it was raised somewhat or had a lump within. Does this seem like a PWS. From the pictures that I have seen, a PWS seems to be smooth with the skin.

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  #9  
Old 02-22-2005, 12:04 PM
alexasmommy
 
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Default Re: Little help!

Hi. PWS is normally flat with no lump under. I am not that familar with a venous malformation but from my understanding that are usually blue/green in color.
You definately need to see a ped derm to rule out a hemag or another vascualr issue.
The waiting game is hard but once you know what kind of "birhmark" your baby has, you will be able to go in the right direction for help, if needed.
Please keep us posted.
Elena
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  #10  
Old 02-22-2005, 04:12 PM
nickbar nickbar is offline
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Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,078
Default Re: Little help!

Are you willing and able to post a picture of the lesion? Proper diagnosis needs to come from a specialist with experience in vb. However, we might be able to give you an opinion.

GOOD LUCK

Corinne
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