AVM in Right Foot - need support - Vascular Birthmarks Foundation Forum
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  #1  
Old 02-25-2005, 04:21 AM
pennyroyal
 
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Default AVM in Right Foot - need support

Hello, I am twenty-eight years old suffering from an out-of-control AVM in my right foot. I am receiving monthly ethenol treatments from Dr. Yakes, and the pain is just too much for me. Until a few months ago, I was able to walk, work, play with my little boy, and live a normal life. I am now confined to bed because of a severe ulceration on the bottom of my foot and frequent hemoraging. I have never been able to talk to someone in a similar situation, and feel very alone. My family is very supportive, but they don't really understand how hard it is to undergo the monthly treatments, the relentless pain, and the sadness that comes with losing your job and mobility. I realize that others have it far worse than I do, but it is just so hard.

I am also having trouble financially, and was wondering if anyone knows of any government resources to help pay for these procedures, as the hospital is refusing to let me have my next procedure unless I come up with $2,500.00! I just don't know where to turn, and I would appreciate any advice...thank you so much...pennyroyal
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  #2  
Old 02-25-2005, 05:50 AM
nickbar nickbar is offline
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Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,054
Default Re: AVM in Right Foot - need support

You have come to the right place for support! You arent alone and we are hear whenever you need to "talk".

Here is a rough list of possible routes for financial help:

Shriner's Hosptials
Grange
Philanthropy Guide in your area
Kiwanis
The national craniofacial association
Independent Charities of America
CFE-Combined Federal Campaign
United Way
State Employee Campaigns
(I have others for children).

I wish you well. Please keep connected to this group for support and encouragement.

Corinne
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Corinne Barinaga
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)
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  #3  
Old 03-16-2005, 03:30 AM
christielee21
 
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Default Re: AVM in Right Foot - need support

just wanted to offer you a bit of support. i'm so sorry that your foot has caused you such pain and has been a hindrance in your life. i don't have much advice... i have a VM on my foot (up my leg and scattered all over the rest of me too!) so i can SORT OF relate to the pain that it can bring. but i just wanted to let you know you're in my thoughts and prayers.
i know it can be discouraging when insurance and hospitals can't cooperate with our situation.... just know that there are others out there and we are here to support eachother.
good luck!
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  #4  
Old 03-25-2005, 05:38 AM
Cuety
 
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Default Re: AVM in Right Foot - need support

i am one who can relate to you.
I have CVM which is similar to what you
have on my entire right leg, up to my hip,
even my foot. I am 22 and sick of letting
it go and being turned down. I live with
pain everyday and it gets worse every year.
i just need some motivation to get help and
do what i have to do. my foot hs the CVM the
worst, it i deep purple almost black.I have constant
spasms followed by foot cramps. Right now i feel
like there is nohope for me... :'(
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  #5  
Old 04-25-2005, 01:03 AM
jazzychris4
 
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Default Re: AVM in Right Foot - need support

hi im christina
i have avm in my arm,14 surgreys,also im seeing dr yakes
i live utah ,keep your chin up
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