Help in South of Boston - Vascular Birthmarks Foundation Forum
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Old 03-22-2005, 09:01 PM
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Default Help in South of Boston

My sister just had a baby boy with a large PWS over his eye, forehead, extending back over the top of his head?* Trying to do research for her (she has 3 kids under 3!!)*

Can anyone recommend a doctor or tx or monthly support group meeting?

She just saw a doctor that recommended laser tx to the forehead only (for now) and then starting his head when he is old enough for general anesthesia at 10-12 months.

Any comments or suggestions will be appreciated.
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Old 03-23-2005, 12:02 AM
eprmo eprmo is offline
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Join Date: Dec 2003
Posts: 149
Default Re: Help in South of Boston

There are two excellent centers in Boston...MGH and Children's...Check out the Mass. physicians list on the referral list,,you are lucky to be near some of the best physicians in the country.!!

Elissa Rifkin
VBF Developmental Specialist
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Old 03-23-2005, 04:37 AM
nickbar nickbar is offline
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Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,078
Default Re: Help in South of Boston

Ditto what Elissa said.* This is the "hub" of the vb world*
The baby will need to be seen by a Pediatric Ophthalmologist as well...the clinic will set her up with all the correct specialists.* i do not know of a local support group, but maybe the office staff will.* However, we have a wonderful support group on msn "The Vascular Birthmark Support Group"

here is the link:*

You are so awesome for helping your sister.

Corinne Barinaga
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)
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