My 3 Year old
My 3 Year old has a port wine stain on the right side of his face. I have one doctor that says he has Sturge Weber Syndome and one that says he doesn't. He also has a large head he is missing 2 of the 3 jugular viens in the lower back of his head . The doctors say they have never seen this before. He has really bad headaches and the doctors are just ignoring me I think it's because we don't have money. Please can so one help me understand about the port winestain, Sturge Weber Syndrome, and the missing jugular veins. thank you!