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  #11  
Old 09-27-2003, 11:03 PM
myasmom
 
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Default Re:AVM on face

Quote:
Originally Posted by semtech
My son 4 years old has a VM on his cheek. We are scheduled for staged sclerotherapy at boston childrens hospital with Dr. Burrows. We do not know if this is the right treatment. what are the side affects of this treatment. Any info will be helpful.
THank You

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  #12  
Old 09-27-2003, 11:08 PM
myasmom
 
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Default Re:AVM on face

My daughter is also seen at Boston Childrens hospital. She is 23, but I have not yet heard of this treatment. Can you tell me a little about it, and what made them decide that your son was a good candidate? I am trying to find some hope for her as well. Thank you!
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  #13  
Old 06-02-2004, 02:17 AM
Patty
 
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Default Re:AVM on face

My son is almos 3 years old. He was borned with a vascular malformation in his right cheek, half tongue, inferior lips, palate and the aereal conduct. He received 2 percutaneous embolization in Argentina but it is still growing. I would like to know if you know anybody with something similar, and what is the best treatment for it.
Thank you for the information.
Patty
Sorry for my english. I'm writing from Peru
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  #14  
Old 06-02-2004, 02:43 AM
nickbar nickbar is offline
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Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,078
Default Re:AVM on face

Patty, I sent you an email.

Corinne
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Corinne Barinaga
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)
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  #15  
Old 06-02-2004, 04:51 PM
Patty
 
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Default Re:AVM on face

Hi Corinne:

I have not received your e-mail, please could send it again.
Thank you,
Patty
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  #16  
Old 06-02-2004, 08:55 PM
nickbar nickbar is offline
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Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,078
Default Re:AVM on face

Patty,

I emailed you again. Twice...sorry...I got your email today and did not put two and two together...so I asked where you were located...I know now.

C
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Corinne Barinaga
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)
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  #17  
Old 06-03-2004, 11:17 PM
Patty
 
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Default Re:AVM on face

Hi Corinne:
I want to know if you can help me. Any information will be fine. I am actually in contact with differents institutions to travel to USA (Operation Smile, Jackson Memorial Foundation, Peruvian Social Security, etc). Here in Peru, doctors doesn't have too much experience in treatments for vm and we don't have technology. Next week there will be a medical meeting to see the posibility to accept (Social Security) send my baby to USA for a treatment. Here, they offer me to make a surgery but I think this is not the best treatment for Alonso. That's why I need to contact somebody that have the vm in the tongue, palate, cheek, lips and aereal conduct.
I've contacted Dr. Berenstein in 2002, but now he is very busy. I want to know which is the best treatment for Alonso. I have to explain that to the medical meeting next Tuesday. I have to convinced doctors that here is no solution for Alonso, but in USA yes.
Sorry for my english. I hope you understand me.
Thank you.
Patty
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  #18  
Old 06-05-2004, 12:09 PM
kd
 
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Default Re:AVM on face

HI Patty,

I sent you and email

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