Without seeing the red marks, it's hard to say exactly what he may have going on.* In general, the "stork bites" on the back of the neck/head are considered macular stains and are very common.* They generally do not go away.* The eyelids may be "angel kisses", the same type of mark (macular stain).* If they are "angel kisses" they generally will fade, usually by the age of 2.* These are both vascular birthmarks.*
The red mark on the forehead/temple could very possibly be a portwine, and if it is....you may possibly include the eyelid involvement in the same category.....but I'd better leave that diagnosis to a knowledgeable doctor.* It does sound like one though.
If it is a portwine stain, then of course you should discuss any testing with the doctor.* If a portwine stain is diagnosed, and there is eyelid involvement...I would be most concerned about testing for glaucoma in the immediate future.* Then I would look into finding out about laser treatment and if it would be your choice to pursue that avenue at this age.* There are advocates of both early treatments and the wait and see approach out there.* ( I myself fall into the early laser treatment category, but it's a personal decision).* Laser treatment in little ones is very often done under general anesthesia depending on the size and location of the area being treated.* Most doctors have a minimum age at which they will begin due the anesthesia.* I think 6 months is a common one.* We started at 14 months...but we didn't get our definite diagnosis until 12 months of age.
The best thing to do is educate yourself.* If in fact he does have a PWS, you may run into medical professionals that are not familiar with it.* Generally because they don't see it enough to think about it.* Unfortunate but true.
Screening for SWS is a hard call.* Testing for it is done by doing an MRI with and without contrast, and sometimes can be inaccurate in very young infants.* Some have tested in infancy, just to have to do it all over again after the age of 2.* It does involve sedation for little ones.* This is another decision that emphasizes the importance of the "right" doctors for your son.* It's a much easier decision to make when your on the same page with the doctors, and have all the facts.*
Remember that SWS is not the norm, it is the exception.* Most people with facial PWS do NOT have SWS.* There are some markers that make it more likely (i.e. upper forehead and upper eyelid involvement), and there again is the reason to find a good doctor.* Other parents opinions is usually a great place to start.* As far as vascular birthmark treatments,* I have heard Linda R's name a lot from parents on this and other boards.*
My son Ben had no outward signs of complications, so we chose and were advised to forgo the MRI until he was older.* When we did do the scan, it turned out that he did have it.* Do I wish I would have done it earlier?* Sometimes yes...usually no.* Do I think I got good advice from the doctor who said to forgo the scan?* No.* Ben's initial MRI was at the age of 33 months.* And looking back...I realize it gave our family a much less stressful time to enjoy our baby.
Which is the most important part of all....enjoy your son!!!* It's a lot to take in, and a frustrating road sometimes.....especially for a first time parent.* My best advice is to take time to watch the miracle of him....because they grow up soooooo fast.
Congrats on you new baby!
(mom to Ben)