I am 23 with facial PWS.
The VBF has a Chapter in Europe. I live in USA but am a member of this group as well as here. A lot of the people on that group have children with Hemangiomas, but there are several people from UK. http://vbfeurope.org/
There are more people with PWS on this group.
My opinion on your post.
I am a bottler with my emotions when I am face to face with someone. When I come to these groups I can open up because I do not feel judged because everybody with a VB knows what it feels like and do not like it. Parents, relatives, and friends do not like people stareing at use either some even get affended about it.
I have learned over the years to ignore people staring, laughing, and the comments towards my PWS. It is negative energy that we do not need in awere lives and if people can not except us for who we are we do not need them around us.
When you get out of High School it will get better, trust me.
Your PWS is in an area where you can cover it up, but I can not. I have tried make up, but for a guy that does not always go well with the public either.
If you have any questions please ask we are here for you.
I will talk to you soon.