A huge thank you to you and Linda for looking up this information! It's not so easy to find (but you already know that).
Iím afraid I havenít got any pictures that show them. None of my AVMs are very large, but some are deep enough that while they hardly show on the skin (no blue mark), if you press you can feel quite a lump. Really, what worries me is the progression. I keep getting more of them, particularly on my left arm.
Well, waist to toes on both legs and shoulder to fingers on the left arm. Most are fairly small, but there are a lot of them (Iíve lost count). I do remember being told some of the ones on my legs were too deep to operate on, but that was back in the 80ís. I was also told last year that not many doctors would be brave enough to try to treat my hand, but Iím not really convinced of that.
It's when the lesions become massive tumors
I donít know if this is common, but I did have a rather strange problem when I was about eight. According to the doctors, I caught strep throat, which caused a medium-sized AVM on my arm swelled up to "baseball size" and then break, giving me blood poisoning and putting me into a coma for quite a few hours. Again though, I was little and all I remember is having a sore throat, mildly sore arm and feeling sleepy. I lay down for a nap and woke up in the hospital. The doctors never were able to pin-point exactly what happened. If it really was AVM related, it would be something parents of kids with AVMs need to watch out for when their children have infections.
I'm sorry she's been so busy lately
Heavens, considering all the good sheís doing out there, Iím happy sheís busy (presuming sheís not working herself sick, that is). More power to her!* ;D
To Julie H.:
Just wanted to say hello! It seems like treatment options get better every year, so hopefully by the time Ben's ready for treatment there will be something even more effective that what there is now. Heís lucky to have a mother (or guardian?) whoís looking out for him. My best wishes and prayers for Ben.