Re: 9 month old with PWS on 35%of torso only!
It is important to have her evaluated by an experienced vb specialist.* I would highly recommend you contact Dr. Delfanian,... you can find his "expert" link on the front page of this website.* He specializes in Klippel-Trenaunay., which is associated with pws on the limbs and growth of the limb.*
We are hear for you...every step of the way.
If you have any questions, please feel free to email me
rinner* @ comcast* *.net (no spaces)
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)