Re: a little about my life with an hemangioma
First of all welcome to the group.
I am 23 with facial PWS. I know exactly what you are talking about. The pointing, staring, and comments can be pretty cruel sometimes. Having a supportive family is very important for people in awere shoes. Parents can share awere pain, but have no clue what it feels like to be looked at like we do day in day out. Thank goodness for technology these days that make a deference in peoples lives.
I hope to hear more about you in the group. I think you can inspire several mothers and other adults on this group to give hope that there is something at the end of the tunnel.
Talk to you soon.