Lasting Laser Therapy of Port Wine Stains - Page 2 - Vascular Birthmarks Foundation Forum
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Go Back   Vascular Birthmarks Foundation Forum > Port Wine Stain Help > Port Wine Stain Help and Resources

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  #11  
Old 09-01-2003, 07:21 PM
Willa
 
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Default Re:Lasting Laser Therapy of Port Wine Stains

Hank,

Thanks for your reply and encouraging words. I want to take her to the very best doctor there is for PWS removal. Do you know who the leading physician is in the country for this type of birthmark removal? The doctor who delivered her said there was a new laser beam which is much better than the old one and was much more effective. Do you know what he might be referring to? Also, at what age should treatment start? It seems to me the younger the better but I really don't know. If you have any more information I would greatly appreciate it.

Thanks,

Willa
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  #12  
Old 09-02-2003, 04:56 AM
hankbartenbach hankbartenbach is offline
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Join Date: Oct 2002
Location: Nebraska
Posts: 538
Default Re:Lasting Laser Therapy of Port Wine Stains

Willa,

Well there is no point in going all around the United States to see a doctor. Most doctors have the same machines just some have different names for them. Like I said before find a dermatologist in your area under the resources. Insurance covers most of the treatments anyways. It might become more then one treatment anywhere you go and that can become pretty expencive traveling. The V-Beam pulse dye laser is a new machine and is very effective. There are several beam lasers. You might want to ask the doctor to be sure what name the laser is because there could be a newer one out now. I suggest starting treatment now because I would not want her to go thru what I have been going thru for 21 years of my life. Being made fun of, teased, constent stares, constent questions. It gets tiring so I suggest the sooner removed the better and less of chance her PWS will inpact her life.
What state do you live in anyways?
I might have heard good things of a doctors in your area you never know.

Talk to you soon.

Hank
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  #13  
Old 10-01-2003, 02:03 AM
lea
 
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Default Re:Lasting Laser Therapy of Port Wine Stains

I have a 4 month old who is scheduled for laser surgery this week. Her PWS is fairly mild--light pink over her left forehead and eyebrow. I've been reading as much as I can but would appreciate any insight from those who have gone through this experience. The doctor told us there is less than 1% chance of scarring with the laser, but I still worry. I read in one article about having a laser response test prior to treatment to test the skin's response to the laser. My doctor did not mention this. Has anyone heard of this?

I would appreciate your comments. As you can tell, I'm a bit nervous about the surgery and would appreciate any words of wisdom/advice/support!

Thanks in advance!
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  #14  
Old 10-01-2003, 03:59 AM
hankbartenbach hankbartenbach is offline
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Join Date: Oct 2002
Location: Nebraska
Posts: 538
Default Re:Lasting Laser Therapy of Port Wine Stains

Hi Lea this is hank.

I have had a testing laser to see the response only because it was a brand new laser and was still expermental. It was highly risky for scaring so they only wanted to do a test area so there was not to much scaring. Do you have the name of the laser the doctor is going to use on your child? If it is the V-Beam pulse dye laser I recommend it all the way. This laser is safe for infants and does not hurt near as much as any of the other lasers. I never even had a numing shoots. If you want to know what is feels like snap a rubber band on your face.

I hope to talk to you soon.
Good luck

Hank
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  #15  
Old 11-07-2003, 03:47 AM
Jeffm
 
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Default Re:Lasting Laser Therapy of Port Wine Stains

HI, on 11-05-03, my daughter was born and she is so wonderful, but after the doctor did her exam she notified my wife and myself that what we thougt were bruses, were actualy what is called a Port-wine-stain. The truth is that she is coverd on approx 35% of her body with the marks. Her face looks great she is so cute, but her left arm,hand,chest,butt,vaginal area and legs are stained dark. She is so cute and if we lived in a vacumm it would be not be that bad, but we dont and it is. As a parent I dont want to be vain but I know how mean people can be and I want her to live a normal life
So that brings me to my ? can this be fixed and what should we expect. How soon is to soon to see a specialist and would you recomend a Childrens Hospital. I am lucky to live in Arkansas and Dr. Waner and his team are at the Arkansas Childrens Hospital. You seem to think that you have seen great sucsess in PWS treatment and you give us hope. Please respond.
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  #16  
Old 11-07-2003, 04:09 AM
hankbartenbach hankbartenbach is offline
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Join Date: Oct 2002
Location: Nebraska
Posts: 538
Default Re:Lasting Laser Therapy of Port Wine Stains

Hi Jeff I would strongly suggest to go see a doctor. I think Dr. Waner is the doctor in Arkansas I have heard allot of good news about. It is never to early to get started. Sooner the better so your daughters life does not get impacted as much. Trust me I have lived with the marks on my face and head for 21 years and people make it hard to live with. A laser you can look into is call a V-Beam pulse dye laser. It is a great laser and is safe for infants. I have used this laser and recommend it. The doctor will now what laser it is.

If you have any questions please ask.

Good luck.

Hank
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  #17  
Old 11-13-2003, 04:31 PM
sun4
 
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Default Re:Lasting Laser Therapy of Port Wine Stains

Lea,
I was wondering how your daughter's treatment went? What type of laser did they use, did they give her a general? How are the results?
My daughter is 1 and we just found out that she also has a pws (they thought it was a stork bite till now) shaped like a dime in the center of her forehead.

Also, has anyone heard or had experience with Dr Robert Wood out of Gillete Specialty Children's hospital in St Paul, MN? I know he will be using the Vandela laser with the cool mist. Here is a link to an article he wrote - i found it informative:

http://www.gillettechildrens.org/DEF...i l&LibID=198
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  #18  
Old 11-25-2003, 06:31 AM
kevin0liew
 
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Default Re:Lasting Laser Therapy of Port Wine Stains

dear purple color,

i am 32 years old, with extensive port-wine stain over my right upper limb.

i had v-beam treatments few times but results are poor.

i am keen to consult your doctor in colorado. may i know his practise address and how can i contact him.

by the way, i am from singapore. thank you
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  #19  
Old 11-25-2003, 07:10 AM
kevin0liew
 
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Default Re:Lasting Laser Therapy of Port Wine Stains

dear all,

i am 32 years old. i have just started v-beam laser treatment for my port-wine stain over my right upper limb and right upper chest.

i have had 4 sessions so far. my dermatolgist told me my birthmark is not fading much. there is also hyperpigmentation on some areas.

i am not sure what to do next. could someone please advise. thanks.

kevin
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  #20  
Old 07-24-2004, 07:16 PM
kf
 
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Default Re:Lasting Laser Therapy of Port Wine Stains

[hi
I'm new on this discussion forum
I'm 24 year old girl and I have aPWS on the major part of my left check
I wonder what to do for treatement since I've tried laser therapy the first time in 1991 then I've had 3 more seesions in 1993, 1995, and 1997
there was no improvement and now I want to treat again but I don't know how to deal with all the variety pf lasers that exist and if there is some improvement to expect
Thank you for answer
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